Den ursäkt jag är skyldig till mina patienter med fibromyalgi

Jag har en ursäkt att göra.

Jag skulle vilja be om ursäkt till alla patienter som jag såg i mina akutarbeten som hade kronisk smärta på grund av fibromyalgi eller autoimmun sjukdom.

Bildresultat för ursäkt Jag är skyldig till mina patienter med fibromyalgi

Jag skulle vilja be om ursäkt för att jag inte visste, förstod och ibland inte ens trodde vad som hände.

Du förstår, medicinsk assistent skolan som medicinsk fakultet, att de inte lär oss hur dessa sjukdomar påverkar livet för våra patienter. De behöver inte berätta för oss att har varit oerhört påfrestande för vår patienten anländer till kontoret eller antagligen för att vila och återhämta sig för nästa dag. Inte berätta för oss att sitta i stolen i väntrummet skadar alla delar av kroppen som tog kontakt med stolen, hans kläder eller skorna. Vi lär inte ut hur din familj påverkas av deras oförmåga att delta i saker, uppmärksamma och omsorg för makar eller barn, eller ens göra middag.

Men nu vet jag. Och jag är ledsen

Jag vet det här eftersom jag har kämpat med fibro och några andra autoimmuna problem ännu inte identifierats i några år. Jag vet att jag var tvungen att lära min unga son att krama försiktigt. Jag vet att jag har hört vänner kommentera hur mycket tid jag spenderar i sängen. Jag vet det här eftersom jag inte längre fysiskt kan se patienter på ett kontor (lyckligtvis har jag kunnat arbeta hemifrån i det nya telemedicinska området). Och jag vet att den bra gamla “fibro misten” ofta gör det som att min telefon skärs medan jag kämpar för att komma ihåg de ord jag ville säga till patienten som jag försöker hjälpa till.

Först ville jag gömma min diagnos från mina kollegor. Det fanns fortfarande många leverantörer där ute som inte ens trodde att fibro var en riktig sjukdom (jag brukade vara en av dem). Men under de senaste två åren av direkta referenser till specialister har test med märkliga men oklara svar, tester av ett läkemedel efter det andra, lärt mig att även om det medicinska samhället är öppet för verkligheten att detta är äkta, gör de fortfarande inte de förstår

Detta slog mig igen för två dagar sedan när jag satte mig på ett datum med en reumatolog som sa: “Jag ser ingenting av oro” fyra gånger under vårt besök. Verkligen? Tror du inte att du måste göra mitt jobb från min säng några dagar är oroande? Tycker du inte isoleringen som orsakats av att inte kunna gå och göra och se saker med min familj är oroande?

Det är dags för leverantörer att sluta titta på laboratorieresultaten och börja titta på hela bilden. Även om leverantörer inte har botemedel, bara ett enkelt bekräftelse av vad patienter verkligen går igenom skulle vara ett stort steg för att sluta klyftan mellan din verklighet och mina.


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