La fibromyalgie tue lentement ce qui allait être ma vie.

La fibromyalgie me tue lentement. Prenez part à moi, ma force, mon orgueil et mon âme. 

Le diagnostic de fibromyalgie est la peine de mort, il était donc une fois une vie normale. Je vis avec ça depuis sept ans et je n’ai pas terminé ce que j’avais prévu, je devrais me préparer maintenant à étudier à l’étranger pendant un an. Je devrais parler couramment dans une autre langue. Après avoir passé la nuit avec des amis, je devrais avoir la gueule de bois chaque dimanche, au lieu de cela, je reste au lit toute la journée, tous les jours. Ou je reste sur le canapé. Je vais chez quelqu’un d’autre et me couche sur son lit ou sur son canapé. La fibromyalgie est un ennemi juré et jaloux. 

Il est toujours là pour essayer de me vaincre. C’est comme le méchant dans un vieux film muet. Au lieu que le public sache que le méchant est là et que le protagoniste ne réalise pas, dans ce cas, je suis le seul à pouvoir le voir et mon public est aveugle.

C’est comme si ma force physique et émotionnelle consistait en petites explosions. Chaque mésaventure vous en enlève un. Je ne sais pas combien de temps cela va prendre jusqu’à ce que tout en moi s’effondre. La fibromyalgie a éliminé les fondations que j’ai construites pendant plus de vingt ans et que j’ai vécues toute ma vie. Je me sens comme un    jeu de Jenga   , chaque fois que la fibromyalgie   me   frappe,    je vais faire un pas de plus pour tomber au sol. Peut-être que je me suis déjà écrasé et frappé. Peut-être que je suis en arrière-plan. Si je ne savais pas à quoi ressemblait cet état, je dirais que c’est probablement là. Je pense que c’est le plus bas possible. Je pouvais ressentir la douleur la plus intense que j’ai jamais ressentie et ma fibromyalgie est un défi, car je sais que ce sera pire la prochaine fois. Certaines épidémies sont meilleures que d’autres, mais elles testent ma force physique et émotionnelle plus que je n’aurais pu l’imaginer auparavant. La fibromyalgie n’est pas une excuse imaginaire, je n’aurais jamais choisi cette vie pour moi-même, et si j’avais la possibilité de me débarrasser du démon qui me soutient, je le ferais sans hésiter. C’est ma vie C’est vrai C’est moi, je suis et je serai avec moi à chaque instant de la journée, pour le reste de ma vie. Le diable m’a murmuré à l’oreille hier:  “Tu n’es pas assez fort pour résister à la tempête.”  Aujourd’hui, j’ai murmuré à l’oreille du diable:   “Je suis la tempête”   . Je suis un guerrier de la fibromyalgie. jessica stredd pudicombe 

De plus, il y a des nuits comme celle-ci, où je me sens perdu. Perdu dans les émotions, dans les pensées, dans la douleur et dans ce qui va venir. Nous comprenons parfaitement les hauts et les bas de nos émotions, heureux pendant une minute, puis en colère, puis tristes, puis nerveux, puis etc., etc. C’est un roller coaster de hauts et de bas. Ajoutez d’autres maladies chroniques et c’est l’enfer! Homme, femme, le fardeau des maladies chroniques fait tomber notre monde. Parfois, nous sentons que les choses sont sous contrôle. Nous sommes parvenus à un accord avec notre réalité, nous savons que les choses ne seront plus comme avant et nous nous adaptons et apprenons à vivre avec ce que notre vie est devenue. Mais parfois, parfois, la réalité de ce qui est à venir s’ouvre et triomphe dans nos vies. Nous savons que notre vie, telle que nous la connaissions, ne sera plus jamais la même. 

La vie dont nous jouissions jadis a été détruite par cette force perverse qui dicte ce que nous faisons et ce que nous ne pouvons pas faire. Il y a des bons et des mauvais jours, des hauts et des bas, des hauts et des bas. Nous avions l’habitude de regarder et de planifier l’avenir, ou de vivre dans le présent avec ceux que nous aimons. Maintenant, en quoi consiste-t-il? Aucun moyen! Les plans que nous avons faits avec des amis, bon, peut-être que c’est une autre fois. La fête avec notre famille, eh bien, donnera mes salutations. Faire des plans, c’est comme n’importe quel jeu à la foire, c’est imprévisible. Nous voulons plus que tout faire partie de tous les plans qui ont été développés, mais nous ne pouvons rien garantir, nous voulons vraiment faire partie de ce que font nos familles. Nous voulons pouvoir faire des plans et les suivre. Nous voulons travailler, nous voulons partir, nous voulons faire partie du monde dans lequel nous étions autrefois impliqués. Parfois, nous devons dire non, 

Nous pouvons dire non, pas aujourd’hui. D’autres fois, nous dirons oui, nous poursuivrons les plans, nous essayons de faire partie de la vie, pour une fois, au moins, nous pouvons faire semblant et dire que c’était amusant, c’était génial de partir. Mais demain arrive. Nos corps disent que tu pensais? La vie que nous connaissions était très différente de ce que nous pensions être. Nous essayons vraiment de conserver une certaine apparence de ce que nous pensons que les choses pourraient être. Mais personne, personne n’est préparé à la vie que nous vivons. Nous continuerons d’essayer de maintenir les plans que nous avons établis, mais s’il vous plaît ne vous fâchez pas et ne jugez pas s’ils changent, mais nous luttons pour maintenir une vie “normale”, qui a été retirée. Que nous reste-t-il? Maintenant, tout ce que nous pouvons faire est d’être positif, humble et, par-dessus tout, d’être patient avec nous-mêmes. 

Prenez le temps pour nous, prenez le temps de pleurer avec nous, prenez le temps de réfléchir, prenez le temps d’apprendre avec nous, quelle est notre nouvelle normalité. Et plus important encore, prenez une minute pour nous concentrer sur nous-mêmes, ce qui fonctionne pour nous et ce qui nous rend heureux. Apprenez à vivre cette nouvelle vie, apprenez à apprécier ce que nous pouvons encore vivre et aimer chaque jour. Prenez-le un jour à la fois, en direct d’un jour à l’autre, d’heure en heure ou de minute en minute. Apprenez à apprécier ce que nous pouvons encore vivre et aimer chaque jour. Prenez-le un jour à la fois, en direct d’un jour à l’autre, d’heure en heure ou de minute en minute. Apprenez à apprécier ce que nous pouvons encore vivre et aimer chaque jour. 

Embrasse ce que tu as et apprends à vivre et aimer la vie comme tu peux! 
Merci d’avoir lu!

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