Para quienes no entienden la fibromialgia.

“Si naces con genes sanos, puedes conocerme, pero no me entiendes. No tuve tanta suerte como tú. Tengo predisposición a sufrir dolores crónicos, fatiga y problemas de concentración. La fibromialgia se ha diagnosticado después de meses, años e incluso décadas de problemas físicos y emocionales. Como no sabías lo enferma que estabas, me llamaste perezoso, fingiendo estar enfermo para no trabajar, o simplemente ridículo. Si tiene tiempo para leer esto, quiero ayudarlo a comprender cuán diferentes somos usted y yo. “

Envío de cartas-b_szo0433

– Lo que necesitas saber sobre la fibromialgia:

La fibromialgia no es una enfermedad nueva. En 1815, William Balfour, un cirujano de la Universidad de Edimburgo, describió la fibromialgia. Con el tiempo, se ha descrito como reumatismo crónico, mialgia o fibrosis. A diferencia de las enfermedades, los síndromes como la fibromialgia no tienen una causa conocida, pero son un grupo de signos y síntomas que, desafortunadamente para el paciente, están presentes al mismo tiempo. La artritis reumatoide y el lupus también son síndromes.

La mayoría de los síntomas y problemas emocionales asociados con la fibromialgia no son psicológicos.

No es un lío en el que “todo está en tu mente”. En 1987, la Asociación Médica Americana reconoció la fibromialgia como una verdadera condición física y una causa importante de discapacidad.

La fibromialgia puede ser debilitante y depresiva, lo que dificulta las actividades cotidianas más simples.

-Qué cosas debes saber de mí:

1. Mi    dolor – Mi dolor no es tu dolor. No es causada por la inflamación. Tomar sus medicamentos para la artritis no me ayudará. No puedo trabajar porque mi cuerpo no soporta. No es un dolor que permanece solo en una parte del cuerpo. Hoy está en mi hombro, pero mañana puede estar en un pie o tal vez se haya ido. Mi dolor es causado por señales malas que llegan a mi cerebro, probablemente debido a trastornos del sueño. No es muy comprendido, pero real.

2. Mi cansancio –    No solo me siento muy cansado. Estoy seriamente agotado. Me gustaría participar en actividades físicas, pero no puedo. Por favor, no lo tomes personalmente. Si me viste comprando ayer, pero hoy no puedo evitar limpiar el trabajo, no es porque no quiera hacerlo. Pago el precio para estresar mis músculos más allá de sus habilidades.

3. Mis problemas de concentración:    llamamos a estos problemas de “niebla de niebla” a todos los que sufren de fibromialgia. Puede que no recuerde tu nombre, pero recuerdo tu cara. Tal vez no recuerdes lo que te prometí hacer, incluso si no me habías hablado antes. Mi problema no tiene nada que ver con la edad, pero tal vez esté relacionado a los trastornos del sueño. No tengo memoria selectiva. Algunos días, incluso, no tengo memoria a corto plazo.

4. Mi torpeza:    si   camino sobre   tus pies o te persigo entre la multitud, no te perseguiré. No tengo el control de mis músculos para hacerlo. Si estás detrás de mí en una escalera, sé paciente. En estos días, tomo la vida y cada paso uno a la vez.

5. Mi sensibilidad – ¡    No puedo quedarme aquí! Esto puede deberse a ciertos factores, como la luz brillante, ruidos muy fuertes o muy débiles, olores. La fibromialgia ha sido llamada “el trastorno que agrava todo”.

6. Mi intolerancia –    No soporto el calor ni la humedad. Si soy un hombre, sudaré profusamente. Si yo también soy mujer. Y no te sorprendas si me muevo sin control cuando hace frío. Tampoco tolero el frío. Mi termostato interno está roto y nadie sabe cómo arreglarlo.

7. Mi depresión:    sí, hay días en que prefiero quedarme en la cama, en casa o morir. El dolor intenso es implacable y puede causar depresión. Tu sincero interés y comprensión pueden sacarme del abismo.

8. Mi estrés:    mi cuerpo no soporta bien el estrés. Si tengo que dejar de trabajar, trabajar a tiempo parcial o delegar mis responsabilidades en casa, no es porque sea perezoso. El estrés diario puede agravar mis síntomas y volverme completamente incapaz.

9. Mi    peso: puedo tener sobrepeso o adelgazar. Sea como sea, no fue mi elección. Mi cuerpo no es tu cuerpo. Mi apetito se ve afectado y nadie sabe como arreglarlo.

10. Mi necesidad de terapia:    si necesito un masaje diario, no me envidies. Mi masaje no es tu masaje. Considere lo que puede hacer un masaje en mi cuerpo si el dolor en una pierna es la semana pasada, ahora lo siento por todo mi cuerpo. El masaje puede ser muy doloroso; pero lo necesito Masajear regularmente puede ayudar, al menos por un momento.

11. Mis días buenos:    si me ves sonreír y funcionar normalmente, no asumas que me siento bien. Sufro de dolor crónico y fatiga incurable. Puedo tener mis días buenos, semanas o incluso meses. De hecho, estos son buenos días que me permiten avanzar.

12. Mi individualidad:    incluso aquellos que sufren de fibromialgia no son lo mismo. Esto significa que no puedo tener todos los síntomas mencionados. Puedo tener dolor de cabeza, cadera, hombro o rodilla, pero no tengo exactamente el mismo dolor que los demás. 
Espero que esto te ayude a entenderme, pero si aún tienes dudas sobre mi dolor, tu librería, tu biblioteca o Internet, tienen buenos libros y artículos sobre la fibromialgia.

Nota del autor: esta carta se basa en conversaciones con mujeres y hombres con fibromialgia en todo el mundo. Esto no representa a ninguno de los 10 millones de personas con fibromialgia en el mundo, pero puede ayudar a las personas sanas a comprender cuán devastadora puede ser esta enfermedad. Por favor, no tomes el dolor de estas personas a la ligera. No quieres pasar un día en su lugar o en su cuerpo. La fibromialgia no es algo que elegimos tener, pero si lo hacemos, debemos llegar a un punto en el que aceptamos la enfermedad como parte de nuestras vidas.

Loading...

113 thoughts on “Para quienes no entienden la fibromialgia.

  1. I am extremely impressed with your writing skills and also with the layout
    on your weblog. Is this a paid theme or did you customize it yourself?
    Either way keep up the excellent quality writing, it’s rare
    to see a great blog like this one today.

  2. Hi there just wanted to give you a brief heads up and let you know a
    few of the pictures aren’t loading correctly. I’m not sure why but
    I think its a linking issue. I’ve tried it in two different
    internet browsers and both show the same outcome.

  3. It’s in point of fact a nice and helpful
    piece of information. I am glad that you shared this useful
    information with us. Please keep us informed like this.

    Thank you for sharing.

  4. Hi! I know this is kind of off topic but I was wondering
    if you knew where I could get a captcha plugin for my comment form?
    I’m using the same blog platform as yours and I’m having difficulty finding one?
    Thanks a lot!

  5. You are so awesome! I don’t think I’ve truly read a single thing
    like this before. So good to find another person with original thoughts on this topic.
    Really.. many thanks for starting this up. This site is something that is required on the internet, someone with a bit of originality!

  6. Thank you for the good writeup. It in fact was a amusement account
    it. Look advanced to more added agreeable from you!
    By the way, how could we communicate?

  7. After looking at a few of the blog articles on your web page, I truly appreciate your way of writing a blog.
    I bookmarked it to my bookmark webpage list and will be checking back soon. Please check out my website as well
    and tell me what you think.

  8. Definitely believe that which you stated. Your favorite justification seemed to
    be on the net the simplest thing to be aware of.

    I say to you, I certainly get annoyed while people think about worries that they
    plainly do not know about. You managed to hit the nail upon the top and also defined out
    the whole thing without having side-effects , people
    can take a signal. Will probably be back to get more. Thanks

  9. Great post. I was checking constantly this weblog and I am
    inspired! Extremely useful information specially the closing part :
    ) I handle such information a lot. I used to be looking for this certain info
    for a long time. Thanks and good luck.

  10. I really love your website.. Pleasant colors & theme.
    Did you build this website yourself? Please reply back as I’m attempting to create my
    very own website and would love to find out where you got this from
    or what the theme is called. Thanks!

  11. I have been exploring for a little for any high-quality articles or blog
    posts in this sort of house . Exploring in Yahoo I eventually stumbled upon this
    web site. Reading this information So i am glad to show that
    I’ve a very just right uncanny feeling I discovered just what I needed.
    I most surely will make sure to do not forget this website and give it a glance regularly.

  12. Heya i am for the first time here. I found this board
    and I to find It really useful & it helped me out a lot.
    I hope to offer something back and help
    others like you helped me.

  13. What’s up everybody, here every one is sharing such knowledge, so it’s
    good to read this blog, and I used to pay a quick visit this website daily.

  14. Fantastic goods from you, man. I’ve understand your stuff prior to and you
    are just extremely fantastic. I really like what you have obtained here, really like what you are
    stating and the best way in which you assert it. You’re making it enjoyable and you still care for to keep it wise.
    I can’t wait to read far more from you. This is really a tremendous
    website.

  15. My programmer is trying to persuade me to move to .net from PHP.
    I have always disliked the idea because of the
    costs. But he’s tryiong none the less. I’ve been using Movable-type on a number of websites
    for about a year and am nervous about switching to another platform.
    I have heard great things about blogengine.net. Is there a
    way I can transfer all my wordpress posts into
    it? Any help would be greatly appreciated!

  16. Thank you for the good writeup. It if truth be told used to be a
    enjoyment account it. Look complicated to far brought agreeable from you!
    However, how can we keep in touch?

  17. Great blog! Do you have any hints for aspiring
    writers? I’m hoping to start my own site soon but I’m a little
    lost on everything. Would you propose starting with a free platform like WordPress or go for a paid option? There
    are so many choices out there that I’m totally confused ..
    Any recommendations? Thank you!

  18. What’s up, all the time i used to check web site posts here in the early hours in the
    break of day, for the reason that i like to find out more
    and more.

  19. Greetings from Los angeles! I’m bored to death at work so I decided to browse your website on my
    iphone during lunch break. I enjoy the knowledge you provide
    here and can’t wait to take a look when I get home.
    I’m shocked at how quick your blog loaded on my cell phone ..
    I’m not even using WIFI, just 3G .. Anyhow, superb
    site!

  20. I’m truly enjoying the design and layout of your site.
    It’s a very easy on the eyes which makes it much more enjoyable for me to come here and visit more often. Did you hire out a designer to create your theme?
    Great work!

  21. Attractive component to content. I simply stumbled upon your website and in accession capital
    to claim that I acquire in fact loved account your blog posts.
    Any way I will be subscribing on your feeds and even I fulfillment you get
    right of entry to constantly rapidly.

  22. Hello! I know this is somewhat off topic but I
    was wondering if you knew where I could find a captcha plugin for my comment
    form? I’m using the same blog platform as yours and I’m having trouble finding one?
    Thanks a lot!

  23. Wow, fantastic blog layout! How lengthy have you been blogging
    for? you make blogging glance easy. The entire look of your website is great, let alone the content material!

  24. Its such as you read my mind! You seem to
    grasp a lot approximately this, such as you wrote
    the book in it or something. I believe that you just could do with a few p.c.

    to power the message home a bit, but instead
    of that, this is fantastic blog. An excellent read. I will certainly be back.

  25. Great goods from you, man. I’ve understand your
    stuff previous to and you’re just extremely excellent.
    I really like what you’ve acquired here, really like
    what you are saying and the way in which you say it.
    You make it entertaining and you still take care of to keep
    it sensible. I can’t wait to read far more from you. This is actually
    a terrific web site.

  26. Today, I went to the beachfront with my children. I found a sea
    shell and gave it to my 4 year old daughter and said “You can hear the ocean if you put this to your ear.” She placed the shell to
    her ear and screamed. There was a hermit crab inside and it pinched her ear.
    She never wants to go back! LoL I know this is entirely off topic but I had to
    tell someone!

  27. I do agree with all of the ideas you’ve presented for your post.
    They are very convincing and will definitely work.
    Nonetheless, the posts are too short for novices. Could you please lengthen them a little
    from next time? Thank you for the post.

  28. I was recommended this web site by my cousin. I am not sure whether this
    post is written by him as nobody else know such detailed about my problem.
    You are incredible! Thanks!

  29. I was wondering if you ever thought of changing
    the page layout of your website? Its very well written; I love what youve got to
    say. But maybe you could a little more in the way of content so people could connect with it better.
    Youve got an awful lot of text for only having one or two images.
    Maybe you could space it out better?

  30. Hi there! This is my first visit to your blog!

    We are a group of volunteers and starting
    a new initiative in a community in the same niche.
    Your blog provided us useful information to work
    on. You have done a wonderful job!

  31. Appreciating the hard work you put into your site and detailed information you present.

    It’s nice to come across a blog every once in a while that
    isn’t the same unwanted rehashed material. Excellent read!

    I’ve saved your site and I’m including your RSS feeds to my Google account.

  32. Pingback: Google
  33. Good day! This is kind of off topic but I need some advice from an established blog.
    Is it difficult to set up your own blog? I’m not very techincal
    but I can figure things out pretty quick. I’m thinking about setting up my own but I’m not sure where to begin. Do you have any
    points or suggestions? Thanks

  34. Have you ever thought about creating an e-book or guest authoring on other sites?
    I have a blog centered on the same information you discuss and would really like to have you share some stories/information. I know my visitors would enjoy
    your work. If you are even remotely interested, feel free
    to shoot me an e-mail.

  35. Hi, I do believe this is an excellent website. I stumbledupon it 😉 I’m going to come back once again since
    I book-marked it. Money and freedom is the best way to change,
    may you be rich and continue to help others.

  36. Hello! I understand this is somewhat off-topic but I had to ask.
    Does managing a well-established website like yours take a large amount
    of work? I am completely new to blogging but I do write in my journal everyday.
    I’d like to start a blog so I can easily share my experience and thoughts online.
    Please let me know if you have any kind of suggestions or tips for new aspiring blog owners.
    Appreciate it!

  37. Fascinating blog! Is your theme custom made or did you download it from somewhere?
    A theme like yours with a few simple adjustements would really make my
    blog stand out. Please let me know where you got your design.
    With thanks

  38. My brother recommended I may like this website.

    He used to be entirely right. This put up actually made my day.
    You can not imagine simply how a lot time I had spent for this info!

    Thanks!

  39. What you said made a great deal of sense. However, think about this, what if
    you typed a catchier post title? I ain’t saying your information isn’t good, but suppose you added
    something that makes people want more? I mean Para quienes no entienden la fibromialgia.
    – HEALTHY LIVING AT HOME is a little plain. You ought to look at Yahoo’s home page and watch how they create article titles to get viewers to click.

    You might add a related video or a pic or two to get people interested about everything’ve written. Just my opinion, it would bring your
    blog a little livelier.

  40. My brother recommended I may like this blog. He used to be entirely right.
    This submit actually made my day. You cann’t consider just how so
    much time I had spent for this info! Thank you!

  41. What’s up to every one, the contents present at this site are
    truly remarkable for people knowledge, well, keep up the nice work fellows.

  42. Hi, i think that i saw you visited my site thus
    i came to “return the favor”.I am attempting to find things to improve my site!I
    suppose its ok to use a few of your ideas!!

Leave a Reply

Your email address will not be published. Required fields are marked *