Ce que les membres de la famille des personnes atteintes de fibromyalgie doivent savoir

Cet article s’adresse aux proches et au cercle proche qui entoure les personnes atteintes de fibromyalgie.

Bien que la fibromyalgie ne soit pas perceptible, elle est très réelle. Beaucoup de gens pensent qu’une personne n’est pas vraiment malade, à moins qu’elle ait l’air malade. Lorsque vous souffrez de fibromyalgie, la personne peut déborder de santé (à l’extérieur), bien qu’à l’intérieur elle comporte une procession de symptômes terribles et très réels.


La fibromyalgie est une maladie difficile à comprendre. Bien qu’il n’y ait pas de remède, il peut être géré pour avoir une qualité de vie. Comme tous les cas sont différents, les traitements tels que les exercices, les médicaments ou les thérapies ne fonctionnent pas aussi bien pour tout le monde. C’est une recherche constante pour trouver ce qui fonctionne le mieux pour vous.


Ne laissez pas les apparences vous tromper. Plusieurs fois, les membres de la famille peuvent avoir l’impression que la personne atteinte de fibromyalgie ne fait pas assez d’efforts pour se sentir mieux, car elle ne mange pas bien ou ne fait pas assez d’activité physique. La vérité est que chaque effort fait, même petit, implique un travail ou des sacrifices bien supérieurs à ce qu’il en coûterait pour rendre une personne en bonne santé.


La fibromyalgie n’est pas un problème psychologique. Beaucoup de gens pensent qu’il est impossible d’avoir autant de symptômes déchirants et que rien ne ressort de leurs examens médicaux. C’est pourquoi ils attribuent souvent cette maladie à un problème d’origine psychologique. Et il est important de savoir qu’il existe suffisamment de preuves scientifiques pour prouver qu’il s’agit d’une condition réelle.


Avec la fibromyalgie, la vie peut complètement changer. Il est naturel que la personne atteinte de fibromyalgie ne puisse plus faire la même chose qu’auparavant ou qu’elle ait besoin de l’aide de ses proches pour pouvoir le faire. Cela peut impliquer de modifier les habitudes de devoir changer de travail.


La fluctuation du niveau d’activité est normale. Une personne atteinte de fibromyalgie peut être très active pendant une journée, car il se peut qu’une autre journée ne puisse même pas sortir du lit. La personne n’est ni paresseuse ni prétendant éviter le travail. Il y aura des jours où votre quantité d’énergie sera très faible. La fibromyalgie est une maladie caractérisée par de nombreux hauts et bas. 
La personne atteinte de fibromyalgie vit dans une souffrance permanente. Même si vous ne l’exprimez pas constamment, vous ressentez toujours une douleur dans tout votre corps, l’épuisement et de nombreux stimuli externes, tels que les odeurs, le bruit, la lumière, le temps et d’autres facteurs, peuvent aggraver votre malaise. Essayez de vous mettre à sa place tout le temps pour le comprendre.
Parfois, la personne atteinte de fibromyalgie évite le contact physique. Vous pouvez ressentir beaucoup de douleur avec des stimuli non douloureux tels que des poignées, des claques dans le dos, des contacts avec les bras et les épaules, et même avec un fort câlin, en général, tout contact produisant une friction ou une friction. Personne ne devrait être offensé si, à un moment quelconque, il s’agit d’éviter ce genre d’intimité.


La fatigue de la fibromyalgie n’est pas une simple fatigue. Ce n’est pas seulement l’épuisement physique, mais aussi l’épuisement mental, qui ne s’améliore pas avec le repos et qui peut prosterner une personne alitée pendant plusieurs jours. La personne se sent épuisée ou épuisée par la fatigue.


La personne atteinte de fibromyalgie n’est ni antisociale ni apathique. Souvent, ils refusent les invitations ou cessent d’assister aux réunions, parce qu’ils sont épuisés, qu’ils traversent une crise ou parce qu’ils ont une énergie limitée, ils craignent que certaines activités ne provoquent une épidémie susceptible d’aggraver tous leurs symptômes. moment à un autre.


La fibromyalgie provoque des problèmes cognitifs. La personne oublie des choses (parfois petites, parfois importantes) et a du mal à se concentrer; Ceci est connu comme fibroneblin. Cela les amène souvent à perdre des objets ou à se sentir désorientés.


Éviter le stress est essentiel pour la personne atteinte de fibromyalgie. Il a été démontré que le stress exacerbe les symptômes de la fibromyalgie en augmentant la douleur, la fatigue et le malaise. Essayez de fournir un environnement calme à la maison et évitez les situations et les facteurs de stress. 
La personne atteinte de fibromyalgie a tendance à être isolée. Cela ne signifie pas que vous voulez mettre fin à votre vie sociale ou que vous n’appréciez plus. Au contraire, essayez de comprendre et de maintenir le contact avec elle, en montrant que vous avez votre affection et votre soutien lorsque vous en avez besoin. Proposez votre aide pour une tâche que vous ne pouvez ou ne pouvez pas faire seule, telle que faire les courses ou aller chercher les enfants à l’école.


Le soutien et la compréhension des membres de leur famille peuvent les aider à se sentir mieux. Bien que vous puissiez faire très peu de choses face à la maladie, ne la traitez pas comme si de rien n’était, car cette attitude peut être perçue comme une apathie ou un désintérêt, vous donnant le sentiment que vous ne vous en souciez pas, ce qui affecte votre relation avec vous et votre santé. physique et émotionnel Au contraire, aidez-le dans les tâches ménagères pouvant demander beaucoup d’efforts, comme suspendre des vêtements ou faire des lits.


Les membres de la famille d’une personne atteinte de fibromyalgie doivent rester bien informés. Si vous ne savez toujours pas de quoi cette maladie parle, effectuez une recherche sur Internet, il existe d’innombrables sources d’informations à ce sujet, ce qui vous permettra d’aider votre bien-aimé à mieux la gérer.


Accompagnez-le à ses rendez-vous médicaux. C’est l’un des meilleurs moyens de montrer votre soutien. De plus, vous le soutenez pour terminer les traitements, tout en comprenant l’état de son état et de ses progrès.


Une bonne communication est fondamentale dans la famille. La fibromyalgie génère des sentiments à la fois chez le patient et chez les autres membres de la famille. Il est essentiel de les exprimer sainement pour éviter les ressentiments et les attitudes hostiles qui ne peuvent qu’aggraver les symptômes ou provoquer une crise chez le patient.


J’espère que ces conseils simples parviendront à tous ceux qui ont un être cher atteint de fibromyalgie ou d’une autre maladie douloureuse chronique.

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