Lady Gaga Fibromyalgia anuncia millones de pacientes

De: Maria Benson

Logan, Utah. Declaración de Sharon Waldrop, vicepresidenta de la Asociación Nacional contra la Fibromialgia y el Dolor Crónico en el reciente anuncio de Lady Gaga de que padece la enfermedad:

“Felicitamos a Lady Gaga por el increíble y valiente acto de revelar su diagnóstico de fibromialgia. Al compartir su historia con el mundo, ella da voz a los cinco millones de estadounidenses que me aman tanto, una abrumadora mayoría de mujeres, que padecen la enfermedad.

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La fibromialgia se caracteriza por una larga lista de síntomas, que incluyen dolor crónico y fatiga incapacitante. La causa es aún desconocida, no hay cura, no hay un tratamiento efectivo, no hay comprensión. Uno puede encontrar mejores tratamientos y una cura educando a las personas sobre la enfermedad y los desafíos devastadores que plantea cada día a millones de familias estadounidenses.
La invisibilidad de la fibromialgia y la falta de comprensión por parte del público de sus efectos suelen asustar a quienes desean revelar su diagnóstico. Cuando tuve el diagnóstico de la enfermedad, pensé que mi vida había terminado. Mi cuerpo, una vez que estaba sano, de repente se sintió magullado y roto, a pesar de que me veía muy bien por fuera. Incluso me pidieron que usara mi tarjeta de estacionamiento para personas con discapacidades, porque la gente no creía que fuera mía. Aquellos que sufren de fibromialgia pueden ser sus amigos, colegas, vecinos y familiares que han estado sufriendo esta enfermedad durante años. Esperamos que el valiente gesto de seguir adelante de Lady Gaga inspire a otros a hacer lo mismo.

Hay más respuestas, pero necesitamos la ayuda de todos para pedir más recursos para encontrarlos. Instamos al público a que se comunique con sus legisladores y les pida que implementen y financien la Estrategia Nacional contra el Dolor desarrollada por el Departamento de Salud y Servicios Sociales para abordar la carga del dolor crónico en los Estados Unidos. Unidos. . Esperamos continuar nuestro trabajo para encontrar una cura para la fibromialgia. Con el apoyo y la participación de líderes como Lady Gaga, el gobierno, abogados y pacientes, ningún objetivo es inalcanzable. “

La Asociación Nacional de Fibromialgia y Dolor Crónico es su socio en la lucha contra la fibromialgia y el dolor crónico. Nuestro objetivo es terminar con el dolor crónico, destruir vidas, promover el diagnóstico temprano, fomentar la investigación científica sobre el tratamiento y abogar por tratamientos apropiados, asequibles y accesibles.Conviértete en un miembro en línea de fmcpaware.org.

Este artículo fue publicado originalmente en fmcpaware.org.

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