10 problèmes que seules les personnes atteintes de fibromyalgie comprendront

Lorsque vous ne vivez pas avec la fibromyalgie, il est difficile de comprendre son impact sur la vie d’une personne. Les guerriers fibros du monde entier savent très bien ce que signifie vivre avec ce désordre global. À moins que vous ne l’ayez traversé vous-même, vous ne le comprenez probablement pas, mais si vous le faites, vous savez que ces problèmes ont un impact important sur la façon dont nous vivons les guerriers fibro. Ce sont 10 problèmes que seules les personnes atteintes de fibromyalgie comprennent.

1. Une douleur chronique qui semble émaner de partout. Quand le médecin demande: “Où est-ce que ça fait mal?”, Vous ne savez pas par où commencer. J’ai mal partout. Quelle douleur est pire? Qui sait? Nous souhaitons simplement pouvoir y mettre fin.

2. Épuisement sans motif discernable. Pourquoi suis-je si fatigué? Je viens de me réveiller! La fatigue chronique qui accompagne la fibromyalgie rend même parfois difficile de sortir du lit.

3. Expliquez que vous n’êtes pas paresseux pour les personnes qui ne le comprennent pas. Non, je ne suis pas paresseux. Mon corps me fait mal et je suis fatigué. Ne pensez-vous pas que je me lèverais et ferais XYZ si je le pouvais? Tout peut sembler insurmontable lorsque vous avez la fibromyalgie.

4. Le paradoxe de l’exercice et ses avantages face à la fatigue. Le médecin dit que l’exercice aidera à la fibromyalgie, mais le fibro rend difficile pour moi de bouger même de temps en temps. Comment puis-je arriver à un endroit où je peux exercer confortablement sans douleur? Les tests pour voir s’ils fonctionnent peuvent causer plus de douleur, ce qui donne l’impression que l’exercice est le diable.

5. Tu viens de me frapper? Oh Non, vous venez de frapper mon épaule. La sensibilité au toucher est un symptôme courant de la fibromyalgie et parfois même le toucher le plus léger est ressenti comme une attaque. Vous voulez mettre un signe sur votre dos qui dit “s’il vous plaît, ne me touchez pas”, mais cela semble offensant. Où est ma chemise qui avertit les gens que quand ils me touchent, on a l’impression de me frapper?

6. Pourriez-vous rejeter cela, s’il vous plaît? Les personnes atteintes de fibromyalgie peuvent avoir des sens intenses, car l’écoute en fait partie. Ce qui semble être un volume normal pour vous sonne comme un mégaphone.

7. Je ne suis pas un rigide chanceux. Mes articulations et mes muscles se raidissent presque constamment et à partir du moment où je me lève, et le mouvement ne l’améliore pas. En fait, à la fin de la journée, je veux retourner au lit pour soulager une partie de ma misère.

8. Crampes aux jambes! Crampes aux pieds! Oh, les spasmes musculaires! Vous en avez assez des spasmes après un moment, vraiment. Personne d’autre ne semble avoir autant de crampes aux jambes que moi et ressemble à beaucoup de bananes.

9. Difficulté à se concentrer est ennuyeux. La fibro brume qui s’empare de mon corps rend la concentration difficile et peut avoir un impact sur ma mémoire à court terme. Je suis désolé de vous avoir demandé de répéter ce que vous venez de dire, mais parfois, je n’arrive pas à me concentrer sur les mots. Les notes autocollantes et les listes occupent toute ma vie pour y faire face. Les planificateurs sont devenus mon meilleur ami, je dois juste me rappeler de les regarder tous les jours.

10. dépression chronique. Il est difficile de ne pas être déprimé quand on est fatigué et que l’on a mal tout le temps. Je suis désolé, je suis toujours si déprimant. J’ai juste du mal à gérer ce trouble et tout ce qui va avec.

Si vous avez la fibromyalgie, je suis sûr que vous pouvez comprendre. Sinon, j’espère que cette lecture vous donnera une idée de ce que signifie vivre dans notre monde. Si vous connaissez une personne atteinte de fibromyalgie, faites-lui un câlin aujourd’hui, soyez gentil.

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