Fibromyalgie: la maladie de l’incompréhension envers les femmes

Vingt-cinq ans ont passé mais nous sommes toujours les mêmes. L’Organisation mondiale de la santé a reconnu la fibromyalgie comme une entité clinique intégrée dans la classification internationale des maladies, mais aujourd’hui, les patientes, parce qu’elles sont avant tout des femmes, ne peuvent pas être comprises par leur environnement, souvent à cause de leur médecin et la plupart de la journée au travail.

L’altération ou l’interruption de la structure ou de la fonction d’une partie du corps présentant des symptômes et des signes caractéristiques et dont l’étiologie et le pronostic peuvent être connus ou non, donne la conclusion d’un diagnostic de fibromyalgie qui conditionne nécessairement la vie de la femme pour au moins deux décennies La combinaison de multiples facteurs génétiques et épigénétiques qui conditionnent les altérations de la douleur, le stress et tous les symptômes qu’elle présente conduit à une détérioration émotionnelle de la personne en raison de son manque de crédibilité lorsqu’elle se présente du jour au lendemain.

La fibromyalgie présente un tableau douloureux sans étiologie organique connue, caractérisée par une douleur musculo-squelettique généralisée, une sensibilité accrue à la douleur, une raideur, une fatigue, une fatigue chronique, une altération du sommeil, un syndrome du côlon irritable, une dépression et des céphalées de tension. Cette maladie qui touche 75% des femmes et seulement 25% des hommes représente entre 2 et 3% de la population, ce qui donne à penser qu’en Espagne, au moins un million deux cent mille personnes en souffrent .

De la médecine interne à la psychiatrie, la patiente a généralement l’impression de ne pas être comprise par la communauté médicale qui la fait effectuer différents tests et tous, ou presque, ne présentent pas de symptômes cliniques. Cela suppose que, les symptômes étant communs à de nombreuses pathologies définies, il est impossible d’atteindre un diagnostic définitif et d’atteindre les systèmes digestif, cardiaque, pulmonaire, etc. Certains médecins qui ne sont pas rhumatologues ne considèrent pas la maladie comme une entité à traiter, car tous les résultats sont normaux.

L’anxiété et l’incertitude, mises à part l’impuissance de la personne qui en souffre et qui n’est pas crue, poussent de nombreux patients à abandonner et à jeter l’éponge pour un tableau dépressif. Les changements de mode de vie, le manque de motivation pour continuer, le manque de force ajouté à la douleur chronique rendent la résolution de ce problème très compliquée. Ce rhumatisme des parties molles du corps, évoqué il y a des siècles par la douleur et la raideur des muscles, a toujours été associé à la mélancolie ou à la tristesse.

En ce sens, il est nécessaire de signaler plusieurs agents déclencheurs pouvant causer la maladie et donc ces  douleurs aiguës.  Ne pas pouvoir ou ne pas savoir comment gérer des situations compliquées et vivre une situation traumatisante telle qu’une séparation, la perte d’un être cher, le chômage, etc. peuvent déclencher une partie de la maladie, bien que certains cas aient fait leurs débuts après avoir su que le patient souffrez de polyarthrite rhumatoïde, de lupus érythémateux ou de spondylarthrite ankylosante.

Une fois que la maladie a été prouvée, les modifications neurobiologiques subies par les patients, ainsi que les modifications biochimiques du cerveau découvertes lors de tests, ont été considérées de la même manière. Avec les mots  «ça fait mal à tout», les patients se plaignent d’inconfort, de malaise, de brûlures, de raideurs, de douleurs généralisées, de picotements, de fatigue constante, de migraines, de menstruations irrégulières, d’intestin irritable, de douleurs à la poitrine, de raideurs matinales, de troubles cognitifs, de troubles de la mémoire, de battements, crampes, vessie irritable, entre autres symptômes.

L’expression de la maladie de la part des patients varie en fonction de l’âge et des circonstances personnelles car non seulement elle influence ce qui se passe, mais aussi comment elle l’apprécie et l’incompréhension ressentie ou non. Ces douleurs souvent traduites en données interprétées faussement suggérant une dépression, une hystérie ou une hypocondrie, ne sont pas toujours comprises par l’environnement et la douleur entretenue au fil des mois peut déclencher des images psychiques d’une approche complexe menant inexorablement à une incapacité de travail. Absolue si elle n’est pas redirigée correctement, la douleur est gérée et un équilibre émotionnel est créé pour l’aider à y faire face.

Si vous êtes une femme et que vous ressentez plusieurs douleurs à la fois, des douleurs non spécifiques, une fatigue chronique et que vous avez entre 35 et 65 ans, consultez un rhumatologue pour tout évaluer ensemble et exclure tout problème de fibromyalgie ou de maladie rhumatologique. Savoir ce qui se passe est le plus important dans cette pathologie qui nécessite environ trois longues années pour être diagnostiqué. La maladie de l’incompréhension, sans doute, que beaucoup de femmes souffrent et que personne ne croit. Il s’agira d’une  maladie chronique,  mais vous devrez apprendre à vivre avec les traitements prometteurs actuellement à l’essai.

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