FIBROMYALGIA: “TENGO 41 AÑOS Y VIVO EN EL CUERPO DE UN HOMBRE VIEJO” ARTÍCULO DE PARTE

Siempre está cansado y siempre duele. Patrick Schutz de Neuchâtel no ha reconocido la fibromialgia, un estado invisible de seguro de discapacidad. 
Dolor, dolor, nada más que dolor: Patrick Schuts (41) Neuchatel siempre tiene la sensación de tener gripe, sin fiebre ni fatiga, pero con una gran ventaja. Quiere quedarse en la cama todo el día y todo el tiempo. “Me duele cada parte de mi cuerpo, por suerte no todas al mismo tiempo”, dijo a la revista “L’illustré”. 
Patrick Schutz y su compañero tienen una hija de tres años, Naya.

Incluso si solo juegas 20 minutos, la alimentación se apagará durante el día. “Cuando duermo y me despierto, estoy tan cansado como siempre he dormido”. Tiene muchos amigos que creen que las falsificaciones se han perdido. Por la noche, no puede irse a la cama a las 7 en punto antes de irse a dormir.

El diagnóstico de la enfermedad hace un año reveló: fibromialgia. En Suiza, se estima que 400,000 personas están afectadas. El problema: la fibromialgia no está reconocida por el seguro de discapacidad ocupacional (IV). No hay evidencia científica: no hay evidencia en la sangre y los rayos X. Cientos de síntomas caracterizan la fibromialgia. Está determinada por la exclusión de otras enfermedades y por pruebas: débilmente utilizadas.

Si once o más de los 18 (puntos blandos) agravan el dolor, existe una sospecha de fibromialgia. Estos puntos diagnósticos están cerca del abordaje tendinomotor. La causa de la enfermedad no está clara y solo puede limitarse con medidas médicas.

La protección de Patrick debe tomar muchos medicamentos: analgésicos, antidepresivos, vitaminas, medicamentos para proteger el estómago y gotas para los ojos sensibles y secos. “Es una enfermedad invisible”, dice Schutz. Quiere que la mayor cantidad posible de personas sepan que usted ha creado un sitio de Facebook para que la fibromialgia llegue a la conciencia de la población.

Patrick lleva dos años desempleado y vive de la asistencia social. Si el IV al menos reconoce parcialmente el sufrimiento, habría sido ayudado. Así que espera el apoyo financiero de la depresión y la fatiga crónica. Su mayor esperanza es una iniciativa ciudadana que acaba de comenzar y requiere el reconocimiento de la fibromialgia como una enfermedad.

Naya juega con su hija, pero después de 20 minutos su energía se agota. 
Patrick está en una alfombra para aliviar el dolor.

La relación de Patrick con su compañera Sylvie también se ha vuelto difícil. No hay canciones de televisión comunes porque duerme temprano. Naya se sorprende de que papá se vaya a la cama mientras ella está en la cama. Patrick Schutz no sabe cuánto tiempo pueden mantener su condición: “¡Tengo solo 41 años y vivo en el cuerpo de un anciano!”  
Patrick sugiere que incluso las experiencias traumáticas en el pasado se pueden desencadenar. A la edad de 17 años estuvo presente cuando su padre golpeó a un hombre con una piedra frente a sus ojos.

Patrick ya no tiene contacto con él. El nacimiento de su hija también fue malo: casi la madre y el niño habían muerto. Patrick: “Estos eventos me sorprendieron profundamente”.

A él le gustaría hacer algo con su esposa e hija, pero su pena y el poco dinero que recibe no es un deseo, realidad.

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