La fibromyalgie, une mort lente: une maladie qui peut prendre jusqu’à 10 ans avant d’être diagnostiquée

La fibromyalgie n’est pas vue, elle en souffre. La fibromyalgie est invisible, mais les millions de personnes qui en souffrent ne le sont pas.

Parce que la fibromyalgie est devenue un problème de santé

Bien que les institutions continuent à regarder ailleurs, la fibromyalgie est une réalité qui continue de croître, qui ne comprend pas les classes sociales, le niveau culturel, l’âge ou le point cardinal. Il peut commencer dans l’enfance et s’aggraver au fil des ans, avec l’apparition de nouveaux symptômes.

Loin d’être psychologiques, comme beaucoup ont insisté pour nous faire croire, les dernières recherches dans le monde suggèrent qu’il s’agit d’une maladie neuro-immune et donc compromettent tous les systèmes du corps, et peuvent apparaître jusqu’à plus de trente symptômes différents. Les plus invalidantes sont la douleur et la fatigue chronique.

“La fibromyalgie est une maladie chronique et invalidante de cause inconnue et sans traitement efficace.”

Depuis de nombreuses années, il a évité cette définition et a préféré accuser le menteur patient, geignard, névrotique, dépressif, filou, victimista … à tel point que la plupart de la société a cru que la fibromyalgie est synonyme de cuentista et tout les forums sont parlés d’une manière méprisante et suspecte de ces patients.

Les personnes concernées sont exposées à un «procès populaire» avec un verdict: «emprisonnement à vie», condamné à s’enfermer chez elles, à ne pas se préparer, à ne pas sourire … parce que si elles le font elles sont repensées. “Ce ne sera pas si mal quand tout est réglé”, “regarde comme elle rit, ça ne fera pas trop mal …”

En plus d’être malade, la société remet en question leur droit de vivre et d’être heureux. Les personnes ayant des difficultés physiques qui réussissent sur le plan sportif ou personnel sont des exemples à suivre et suscitent l’admiration, et personne ne doute de leur handicap. Cette admiration et cette empathie se manifestent dans toutes les maladies sauf la fibromyalgie.

Le patient de la fibromyalgie qui parvient à être heureux, malgré la maladie, et parvient à réussir, malgré les très grandes difficultés, n’est pas apprécié pour sa force et son désir d’exceller, ni n’est un exemple de vie, c’est simplement une raison de questionner son diagnostic et, avec lui, le professionnalisme du médecin qui le lui a donné.

Le fait que la dure réalité de cette dure maladie ait été niée depuis si longtemps a causé un préjudice physique et moral irréparable à de nombreuses personnes touchées.

Traitement

Au niveau de la santé, la polypharmacie a été abusée et des toxicomanes ont été créés et le fait de faire croire à leur environnement et à la société qu’ils «n’ont rien» a entraîné des ruptures familiales, du harcèlement, des licenciements et des condamnations défavorables. d’incapacité de travail.

Lorsque, pour tous ces dommages collatéraux, le patient est submergé dans une dépression, celui qui reste obsédé à nier l’évidence est confirmé par le fait que «son problème est psychologique».

Il y a des années nous pouvions justifier ce “traitement inapproprié” dû à l’ignorance de l’origine de la pathologie, mais après trente ans, cela ne marche plus. Bien que nous ne sachions toujours pas quelle est l’origine, bien qu’il n’y ait pas encore de marqueur mesurable, il est temps de prendre ses responsabilités et de commencer à le chercher.

Parce que la fibromyalgie est passée d’un problème de santé à un problème social. Il touche 5,4% de la population, 92,7% sont des femmes à risque d’exclusion sociale.

“La fibromyalgie est une maladie chronique et invalidante de cause inconnue et sans traitement efficace.” Il s’agit d’une phrase directe et facile à comprendre, il est temps de l’accepter, de prendre ses responsabilités et d’agir en conséquence, par exemple en investissant dans la recherche et les ressources pour le traitement approprié de la maladie.

La fibromyalgie n’est pas seulement une douleur, comme certains le disent, comme si ce n’était pas beaucoup. Il affecte l’organisme entier, de sorte que le patient se promène de spécialité en spécialité médicale, pendant des années, jusqu’à obtenir finalement un diagnostic qui n’aide pas beaucoup parce que le médicament prescrit ne fait pas disparaître la douleur.

Le résultat est une dépense extraordinaire du système de santé et du temps perdu pour le patient, ce qui ajoute à ses symptômes les effets secondaires de la polypharmacie et de la frustration. La frustration est également partagée par les médecins qui veulent aider le patient mais se sentent impuissants par manque de temps dans les consultations et les ressources pour les servir de manière multidisciplinaire comme ils le méritent.

La solution est d’avoir la volonté politique d’investir dans la recherche et la formation de médecins experts qui dirigent ces unités. Cette forme de soins serait moins coûteuse pour le système et améliorerait la qualité de vie du patient et donc l’environnement familial et professionnel. Peut-être l’une des raisons pour lesquelles il n’est pas étudié est parce que “la fibromyalgie ne meurt pas …”

Avec la fibromyalgie, vous ne vivez pas, vous survivez

Loading...

165 thoughts on “La fibromyalgie, une mort lente: une maladie qui peut prendre jusqu’à 10 ans avant d’être diagnostiquée

  1. Unquestionably believe that which you said.

    Your favorite justification appeared to be on the web the easiest thing to be aware of.

    I say to you, I certainly get annoyed while people think about worries that they just do not know about.
    You managed to hit the nail upon the top as well as defined out
    the whole thing without having side-effects , people could take
    a signal. Will probably be back to get more. Thanks

  2. Does your blog have a contact page? I’m having trouble
    locating it but, I’d like to shoot you an e-mail. I’ve got some creative ideas
    for your blog you might be interested in hearing.

    Either way, great blog and I look forward to seeing it improve
    over time.

  3. of course like your web-site however you have to check the spelling on several of your
    posts. Many of them are rife with spelling problems and I find it very bothersome to inform the
    reality however I’ll definitely come again again.

  4. Simply want to say your article is as amazing. The clarity in your post is just cool
    and i could assume you are an expert on this subject. Fine with
    your permission let me to grab your feed to keep up to date with forthcoming post.
    Thanks a million and please continue the rewarding work.

  5. I don’t even know the way I ended up right here, but I
    believed this put up used to be great. I don’t know who you are however certainly you are
    going to a well-known blogger for those who aren’t already.
    Cheers!

  6. We’re a gaggle of volunteers and opening a brand new scheme in our community.
    Your web site provided us with useful information to work on. You’ve performed a
    formidable process and our entire group will be
    grateful to you.

  7. It’s truly a great and helpful piece of info. I am happy that you simply shared this useful info with us.
    Please keep us up to date like this. Thanks for sharing.

  8. Hi, i think that i saw you visited my web site so i came to “return the favor”.I am attempting to find things
    to improve my web site!I suppose its ok to use some of your ideas!!

  9. It’s a pity you don’t have a donate button! I’d certainly donate to this superb
    blog! I guess for now i’ll settle for book-marking and adding your
    RSS feed to my Google account. I look forward to fresh updates and will talk about this blog with my Facebook group.
    Talk soon!

  10. Can I simply say what a comfort to find somebody that really understands what they’re discussing on the internet.
    You actually understand how to bring an issue to light and make it important.
    A lot more people must look at this and understand this side of the
    story. I was surprised that you are not more popular since you definitely have the
    gift.

  11. Hey there! This is my first visit to your blog! We are a collection of volunteers and starting a new project in a
    community in the same niche. Your blog provided us useful information to work on. You have done a outstanding job!

  12. First of all I want to say superb blog! I had a quick question which I’d
    like to ask if you don’t mind. I was curious to know how you center yourself and
    clear your mind before writing. I have had difficulty clearing my
    thoughts in getting my thoughts out. I do take pleasure
    in writing however it just seems like the first 10 to 15 minutes are usually wasted just trying to figure out how to
    begin. Any ideas or tips? Kudos!

  13. You’re so awesome! I don’t believe I’ve read a
    single thing like that before. So wonderful to discover someone with some genuine thoughts on this subject.
    Seriously.. many thanks for starting this up.
    This site is one thing that is needed on the web, someone with some originality!

  14. Attractive section of content. I simply stumbled upon your website and in accession capital to claim that
    I get actually loved account your weblog posts. Any way I will be subscribing for your augment or even I achievement you access constantly quickly.

  15. Hmm it appears like your blog ate my first comment (it was super
    long) so I guess I’ll just sum it up what I had written and say,
    I’m thoroughly enjoying your blog. I too am an aspiring blog blogger but I’m still new
    to the whole thing. Do you have any helpful hints for novice blog writers?
    I’d genuinely appreciate it.

  16. Howdy! This blog post couldn’t be written much better! Looking through this article reminds me
    of my previous roommate! He constantly kept talking about this.
    I’ll send this article to him. Fairly certain he’s going to have a very good read.
    Thank you for sharing!

  17. It’s truly a great and helpful piece of information. I
    am glad that you simply shared this useful information with us.
    Please stay us up to date like this. Thanks for sharing.

  18. I was excited to find this great site. I need to to thank you
    for your time for this particularly wonderful read!!

    I definitely liked every bit of it and I have you book marked to check out new
    stuff in your blog.

  19. Hi, Neat post. There’s an issue with your site in web explorer, could test this?
    IE still is the market chief and a good element of other
    folks will pass over your magnificent writing because of this problem.

  20. Do you have a spam problem on this blog; I also am a blogger, and I was wanting to know your
    situation; many of us have created some nice methods and we are looking to
    swap strategies with other folks, please shoot me an email if interested.

  21. Wonderful blog! I found it while searching on Yahoo News.
    Do you have any suggestions on how to get listed in Yahoo News?
    I’ve been trying for a while but I never seem to
    get there! Many thanks

  22. I’m truly enjoying the design and layout of your blog. It’s a very easy on the
    eyes which makes it much more enjoyable for me to come here and visit more
    often. Did you hire out a designer to create your theme?
    Great work!

  23. I was wondering if you ever considered changing the page
    layout of your site? Its very well written; I love what youve got to say.

    But maybe you could a little more in the way of content so people could connect with it better.
    Youve got an awful lot of text for only having one or 2 images.
    Maybe you could space it out better?

  24. We absolutely love your blog and find nearly all of your post’s to be precisely what I’m looking for.
    Does one offer guest writers to write content for yourself?
    I wouldn’t mind writing a post or elaborating on many of the subjects you write with regards to here.
    Again, awesome web log!

  25. You actually make it seem so easy with your presentation but I find this topic to be really something that
    I think I would never understand. It seems too complicated and very broad for me.

    I’m looking forward for your next post, I will try to get the hang of it!

  26. Thanks for your marvelous posting! I seriously enjoyed reading it, you might be a great
    author.I will be sure to bookmark your blog and definitely will come back very soon. I
    want to encourage you to continue your great writing, have a nice day!

  27. My brother suggested I may like this blog.
    He was once entirely right. This post truly made my day.
    You cann’t imagine just how so much time I had spent for this information! Thanks!

  28. hello!,I love your writing very so much! share we communicate extra about
    your article on AOL? I require an expert on this space to solve
    my problem. May be that’s you! Looking ahead to look you.

  29. I got this web page from my pal who informed me about this site and now this time I am browsing this web
    site and reading very informative content here.

  30. great points altogether, you simply won a new reader.
    What would you recommend in regards to your put up that you just made a few days in the past?
    Any certain?

  31. Hi, I think your website might be having browser compatibility issues.
    When I look at your blog site in Firefox, it looks fine but when opening in Internet Explorer, it has some overlapping.

    I just wanted to give you a quick heads up! Other then that, awesome blog!

  32. Does your blog have a contact page? I’m having problems locating it but, I’d like to shoot you an e-mail.

    I’ve got some ideas for your blog you might be interested in hearing.
    Either way, great website and I look forward to seeing it expand over time.

  33. Hey would you mind letting me know which hosting company you’re working with?

    I’ve loaded your blog in 3 different web browsers and I must say
    this blog loads a lot faster then most. Can you suggest a
    good hosting provider at a reasonable price?
    Thanks, I appreciate it!

  34. Thank you, I’ve just been searching for information approximately this subject for ages and yours is the
    greatest I have found out so far. But, what in regards to the conclusion? Are you certain about the source?

  35. Hi, I do think this is an excellent blog. I stumbledupon it 😉 I may come back
    once again since I book-marked it. Money and freedom is the greatest way to change, may you be rich and continue to
    guide other people.

  36. Hey superb blog! Does running a blog such as this require a lot of work?
    I have no understanding of coding however I had been hoping to start my own blog soon. Anyhow, should you have
    any suggestions or tips for new blog owners please share.
    I know this is off topic but I simply wanted to ask. Thank you!

  37. I think that is one of the so much important info for me.
    And i’m satisfied reading your article. But wanna commentary on some common things, The web site style is wonderful,
    the articles is really excellent : D. Just right activity,
    cheers

  38. Hi there, just became aware of your blog through Google, and found that it’s truly informative.
    I am going to watch out for brussels. I’ll appreciate if you continue this in future.

    Lots of people will be benefited from your writing. Cheers!

  39. When someone writes an post he/she keeps the thought of a user in his/her brain that how a user can know it.
    Therefore that’s why this piece of writing is amazing.
    Thanks!

  40. What’s Going down i am new to this, I stumbled upon this I have discovered It positively
    useful and it has aided me out loads. I am hoping to contribute &
    assist other users like its helped me. Great job.

  41. I like what you guys are up too. This kind of clever work and exposure!
    Keep up the fantastic works guys I’ve incorporated you guys to
    blogroll.

  42. Hi there! I could have sworn I’ve been to this website before but after browsing through some of the post I realized it’s new
    to me. Anyhow, I’m definitely glad I found
    it and I’ll be bookmarking and checking back often!

  43. What’s up to every one, the contents existing at this web page are actually amazing for
    people knowledge, well, keep up the good work fellows.

  44. This is really fascinating, You are a very skilled blogger.
    I’ve joined your rss feed and look ahead to looking for more of
    your excellent post. Also, I have shared your web site in my
    social networks

  45. Hi, Neat post. There is a problem with your web site in internet explorer, might test this?
    IE still is the marketplace leader and a huge portion of other folks will omit your great writing because of this problem.

  46. I was recommended this blog by my cousin. I’m not sure whether
    this post is written by him as no one else know such detailed
    about my difficulty. You’re wonderful! Thanks!

  47. I’ve been surfing online more than three hours nowadays, yet I never found
    any interesting article like yours. It is lovely value enough for
    me. In my opinion, if all site owners and bloggers made
    just right content material as you did, the internet will be much more useful than ever before.

  48. Very great post. I simply stumbled upon your weblog and wanted to mention that I’ve truly loved
    surfing around your weblog posts. In any case I will
    be subscribing on your rss feed and I hope you write once more soon!

  49. Pretty section of content. I just stumbled upon your blog
    and in accession capital to assert that I
    acquire actually enjoyed account your blog posts. Anyway I’ll be
    subscribing to your augment and even I achievement you access consistently rapidly.

  50. Hello, i believe that i noticed you visited my site thus i came to return the favor?.I am trying to to find issues
    to improve my website!I guess its adequate to make use of some
    of your ideas!!

  51. Definitely believe that that you stated. Your favorite justification appeared to be
    on the web the easiest factor to be mindful of. I say to you, I certainly get irked while other folks consider issues that they plainly don’t understand about.
    You managed to hit the nail upon the top and outlined out the entire thing
    without having side-effects , people could take a signal.
    Will likely be back to get more. Thanks

  52. Hello there! This is kind of off topic but I need
    some help from an established blog. Is it very hard to set up your own blog?

    I’m not very techincal but I can figure things out pretty fast.
    I’m thinking about making my own but I’m not sure where
    to start. Do you have any ideas or suggestions? Appreciate it

  53. Wow, awesome blog layout! How long have you been blogging for?

    you make blogging look easy. The overall look of your website is fantastic, let alone the content!

  54. Thanks for your personal marvelous posting!

    I truly enjoyed reading it, you can be a great author.
    I will be sure to bookmark your blog and will often come back in the foreseeable future.
    I want to encourage you to ultimately continue your great writing, have a nice weekend!

  55. Hello there! This is my first visit to your blog!
    We are a team of volunteers and starting a new initiative in a community
    in the same niche. Your blog provided us useful information to work
    on. You have done a outstanding job!

  56. Wow, fantastic blog layout! How long have you been blogging for?
    you make blogging look easy. The overall look of your web site is magnificent, let alone the content!

  57. Just want to say your article is as surprising.
    The clarity in your post is simply cool and i can assume you are an expert on this subject.
    Fine with your permission let me to grab your RSS feed to keep up to date with forthcoming post.
    Thanks a million and please keep up the rewarding work.

  58. Thanks a lot for sharing this with all folks you actually
    realize what you’re talking about! Bookmarked. Kindly also visit my site =).
    We may have a hyperlink change contract among us

  59. It is the best time to make some plans for the longer term and it’s
    time to be happy. I have read this publish and if I may just I want to counsel you few attention-grabbing things or
    suggestions. Maybe you can write subsequent articles referring to this
    article. I desire to learn more issues approximately it!

  60. Thanks for some other informative blog. Where else could I get that type of info written in such a perfect
    means? I’ve a project that I’m just now operating on, and
    I have been at the glance out for such information.

  61. Heya i’m for the first time here. I came across this board and
    I find It really useful & it helped me out much.
    I hope to give something back and help others like you helped me.

  62. Heya! I’m at work browsing your blog from my new apple
    iphone! Just wanted to say I love reading through your blog and look forward to all your posts!
    Keep up the great work!

  63. It is perfect time to make some plans for the long
    run and it’s time to be happy. I have read this post and
    if I may I want to recommend you some fascinating things or suggestions.
    Maybe you could write next articles referring to this article.
    I wish to learn more issues about it!

Leave a Reply

Your email address will not be published. Required fields are marked *