22 metaforen die beschrijven hoe fibromyalgie aanvoelt

Als iemand nooit fibromyalgie  (“fibro”) heeft meegemaakt  , kan het voor hen moeilijk zijn om te begrijpen hoe het echt is voor diegenen die aan de ziekte lijden. Gewoon zeggen dat je pijn of vermoeidheid hebt, is vaak niet genoeg om de volledige realiteit van de symptomen over te brengen. Hoewel bijna iedereen op een bepaald moment fysieke pijn heeft gevoeld, kan het zich manifesteren in verschillende delen van hun lichaam, in verschillende gradaties van ernst en in verschillende vormen (ondoorzichtig, scherp, kloppend, enz.). Hoe is de pijn voor een persoon met fibromyalgie waarschijnlijk heel anders dan de dagelijkse pijn, pijn en kleine verwondingen waarmee de gemiddelde en gezonde persoon vertrouwd is.

Soms is een van de meest effectieve manieren om te communiceren hoe je je voelt, door middel van metaforen. We  hebben onze Machtige gemeenschap  gevraagd om enkele van de metaforen te delen die ze gebruiken om de symptomen van hun fibromyalgie te beschrijven. Het is te hopen dat de volgende beschrijvingen anderen kunnen helpen de dagelijkse ervaring van mensen met fibro beter te begrijpen.

Dit is wat de community met ons heeft gedeeld:

1. “Ik voel dat [ik] voortdurend door de modder waad. Alsof mijn hersenen geblokkeerd zijn. Mijn ledematen zijn zwaar en elke kleine actie vereist grote inspanning. Mijn spieren zijn moe en beuken. Het is alsof je de hele tijd door een moeras dwaalt. “

2. “Het is alsof je de griep altijd combineert met het gevoel dat iemand je fysiek slaat. Er wordt verwacht dat de hele tijd normaal zal werken. “

3. “Hersenmist lijkt op Charlie Brown-afleveringen wanneer volwassenen praten. Alles wat je hoort is de megafoon uit wanneer mensen praten. Het mengt alles en heeft geen zin in je hersenen. Wanneer je met mensen aan de telefoon praat, kun je niet aan de juiste woorden denken, je kunt je zinnen verwarren en je hebt geen zin. Mensen staren je aan en je weet dat ze geen idee hebben waar je het over hebt. ‘

4. “Het is alsof alle delen van je lichaam gekneusd zijn maar [de kneuzingen] onzichtbaar zijn, en soms zou je willen dat ze zichtbaar waren omdat mensen dan je pijn serieus konden nemen.”

5. “Ik vraag me altijd af of iemand het label van die truck heeft dat je steeds weer raakt. Elke dag. “

6. “Je bent een vlieger die wordt gegooid door onzichtbare krachten die wegzweven van de realiteit aan een touw dat op elk moment kan worden verbroken.”

7. “Mijn spieren zijn zo zwak dat ze het gevoel hebben dat ik probeer te lopen met mijn binnenste teer, met verschillende cementblokken aan mijn benen en armen.”

8. “Blijf drie dagen wakker en vul je regenlaarzen met gebroken glas. Terwijl je je kapotte glazen regenlaarzen draagt, ren dan rond terwijl je wordt beschoten met paintballs. “

9. “Het is net alsof iemand een voodoo-pop van je heeft die ze niet alleen kunnen laten.”

10. “Stel je voor dat je iPhone kapot is. Elke keer dat je het oplaadt, kan het een volle batterij tonen, maar in werkelijkheid is het altijd 30 procent. Uw telefoon heeft veel functies, die elk een verschillende hoeveelheid stroom nodig hebben. Het is aan jou om je batterij te gebruiken. Als u zich beperkt tot kleine activiteiten zoals het verzenden van tekstberichten, gaat uw batterij langer mee. Als je een video bekijkt of een game speelt, is deze sneller leeg. Als de batterij leeg is, wordt de telefoon volledig uitgeschakeld en duurt het opladen langer. Fibro is hetzelfde. Je lichaam heeft een zeer beperkte hoeveelheid energie. Je moet goed nadenken over wat je elke dag doet, zodat je batterij niet opraakt en uitvalt. “

11. “[[  Fibromyalgie  is] als het dragen van een loodschort na het trekken van een nachtelijk geheel een paar dagen nadat het in de rug is gezet.”

12. “[Het is] alsof mijn skelet twee maten te groot is voor de rest van mij, en elk bot is op zijn plaats verdraaid.”

13. “Het is het gevoel dat je hebt als je te hard traint in de sportschool, maar het is de hele tijd en het enige wat je hoeft te doen is bewegen om het te krijgen.”

14. “Stel je de ergste pijn voor die je hebt gevoeld. Doe het nu 10 keer intenser en door je hele lichaam. Stel je nu voor dat het gevoel nooit verdwijnt omdat er geen remedie is. “

15. “[Het is] alsof een olifant op je zat, je hebt het gevoel dat je de hele dag probeert om het te duwen. Het is vermoeiend en het werkt niet! “

16. “Het is als een verankerde boot en alles wat ik kan voelen is het gewicht van het anker op hetzelfde moment dat ik ernstige brandwonden, steekpartijen, elektrische schokken voel en alsof ik ben geraakt en over [een] bus ben overgelopen lichaam. “

17. “Het is alsof je altijd in de voorjaarsvakantie bent: je bent moe, je hebt een kater, je hebt niet genoeg water gedronken, je lichaam doet overal pijn en je hebt de hele tijd misselijkheid; en je wordt steeds ouder en minder in staat om met de symptomen om te gaan. ‘

18. “Het is alsof je in een draaimolen bent. Het gaat rond en rond, duizelig, pijnlijk van het zo lang vasthouden van het paard, de maag pijnlijk op elkaar geklemd. De hoofdpijn komt  eraan en je kunt het woord niet meer herinneren om te stoppen!

19. “Het is alsof je altijd een röntgenschort draagt ​​terwijl je griep hebt en overal zonnebrand hebt. Af en toe komt er iemand je heet water toedienen of slaat je met spelden. Hij is de hele tijd moe, maar wanneer hij gaat slapen, kan hij zich niet comfortabel voelen en slaapt hij niet goed (of lange tijd). En dit wordt elke dag herhaald als de ‘Groundhog Day’. “

20. “Het is alsof je steeds weer op de achtbaan rijdt zonder echt de beste, meest angstaanjagende, gekke, met allerlei bochten en bochten te rijden.”

21. “Het hebben van fibromyalgie is als een evenwichtsbalk. Als je te veel rust hebt voor je linkerhand, val je voor gebrek aan activiteit. Als je te veel activiteit in je rechterhand hebt, valt deze aan de andere kant. Je moet het evenwicht vinden of je zult vallen, en het is erg moeilijk om weer omhoog te gaan “.

22. “[Het is] alsof je elke dag wakker wordt met de griep, maar het loopt nooit zijn gang. En daar moet je voor eeuwig mee leven en doen alsof het er niet is. ‘

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