5 cosas para no decir a alguien con fibromialgia

Viviendo con fibromialgia es extremadamente difícil, ya que millones de enfermos en todo el mundo pueden dar fe. El hecho de que el dolor físico y emocional no es visible para los demás a menudo puede hacer que sea aún más difícil. La fibromialgia es conocida como una “enfermedad invisible” porque su dolorosa y debilitante menudo, los efectos secundarios a menudo no son aparentes para los demás.

Una persona con fibromialgia puede parecer totalmente bien por fuera, pero estar sufriendo de un dolor insoportable en el interior. La comprensión de este hecho es importante para aquellos que buscan ser de apoyo de un amigo o familiar de una persona con fibromialgia.

Si bien a menudo es difícil encontrar las palabras para prestar apoyo y esperanza para los que sufren de fibromialgia, aquí hay una lista de 5 cosas que definitivamente no quiere decir que alguien con fibromialgia. Creemos nosotros, que está diciendo nada en absoluto mejor que una de estas 5 cosas.

# 1 “Usted no parece enfermo”

Este comentario demuestra una completa falta de comprensión de las enfermedades invisibles. No todas las enfermedades graves viene con síntomas evidentes, exteriormente aparentes, tales como estar en una silla de ruedas. los enfermos de fibromialgia a menudo han aprendido los mecanismos de adaptación y pueden utilizar su energía limitada cada día para tratar de parecer más normal a los demás. Pero el dolor sigue ahí. E incluso haciendo alusión a alguien con fibromialgia que están fingiendo que es probable que ponga su relación con ellos en situación de riesgo.

# 2 “Debe ser agradable para no tener que trabajar”

Uh, no … no lo es. La gran mayoría de los que sufren de fibromialgia haría cualquier cosa para recuperar su independencia y la capacidad de trabajar a tiempo completo.

La insinuación de que no ser capaz de trabajo fue una elección o que son sólo pereza es increíblemente insultante.

# 3 “He oído que la fibromialgia no es una enfermedad real”

Ya has oído mal. La causa de la fibromialgia todavía se está estudiando y la cantidad de la investigación va a la zaga de otras condiciones de salud debido a la falta de entendimiento histórico. Pero eso no significa que sea menos real durante casi 6 millones de personas con fibromialgia en los Estados Unidos solamente.

La fibromialgia fue reconocida oficialmente como una enfermedad real por la industria de la salud de Estados Unidos a finales del año pasado, cuando se le concedió su propio código de diagnóstico y ha sido reconocido desde hace años por la Administración de la FDA y de la Seguridad Social.

# 4 “Usted sólo tiene que conseguir más ejercicio y ser más activo”

Si sólo fuera así de fácil. El hecho es que muchos enfermos de fibromialgia empujan los límites de su capacidad física por levantarse y tomar una ducha cada día.

Muchos lo hacen encontrar algún alivio en el yoga u otros ejercicios suaves como los aeróbicos de agua. Pero a menudo el tipo de esfuerzo que viene con el ejercicio no es una posibilidad.

# 5 “Es todo en su cabeza”

Hemos salvado el peor para el final. En realidad no, no lo es todo en mi cabeza. El dolor y la fatiga se encuentra en todo el cuerpo y, a veces siento que incluso mi duele el pelo! Sí, es tan malo y el hecho de que no se puede ver mi dolor no significa que no es una condición física. El estrés, la ansiedad y la depresión pueden hacer que todos los síntomas de dolor crónico peor, pero por lo general no causan el dolor.

Si ha llegado hasta aquí, es probable que sea un enfermo de fibromialgia o alguien que realmente quiere entender la fibromialgia para apoyar a alguien que aman. abrazos suaves a que si son los primeros y muchas gracias si usted es el último.


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