5 cosas para no decir a alguien con fibromialgia

Viviendo con fibromialgia es extremadamente difícil, ya que millones de enfermos en todo el mundo pueden dar fe. El hecho de que el dolor físico y emocional no es visible para los demás a menudo puede hacer que sea aún más difícil. La fibromialgia es conocida como una “enfermedad invisible” porque su dolorosa y debilitante menudo, los efectos secundarios a menudo no son aparentes para los demás.

Una persona con fibromialgia puede parecer totalmente bien por fuera, pero estar sufriendo de un dolor insoportable en el interior. La comprensión de este hecho es importante para aquellos que buscan ser de apoyo de un amigo o familiar de una persona con fibromialgia.

Si bien a menudo es difícil encontrar las palabras para prestar apoyo y esperanza para los que sufren de fibromialgia, aquí hay una lista de 5 cosas que definitivamente no quiere decir que alguien con fibromialgia. Creemos nosotros, que está diciendo nada en absoluto mejor que una de estas 5 cosas.

# 1 “Usted no parece enfermo”

Este comentario demuestra una completa falta de comprensión de las enfermedades invisibles. No todas las enfermedades graves viene con síntomas evidentes, exteriormente aparentes, tales como estar en una silla de ruedas. los enfermos de fibromialgia a menudo han aprendido los mecanismos de adaptación y pueden utilizar su energía limitada cada día para tratar de parecer más normal a los demás. Pero el dolor sigue ahí. E incluso haciendo alusión a alguien con fibromialgia que están fingiendo que es probable que ponga su relación con ellos en situación de riesgo.

# 2 “Debe ser agradable para no tener que trabajar”

Uh, no … no lo es. La gran mayoría de los que sufren de fibromialgia haría cualquier cosa para recuperar su independencia y la capacidad de trabajar a tiempo completo.

La insinuación de que no ser capaz de trabajo fue una elección o que son sólo pereza es increíblemente insultante.

# 3 “He oído que la fibromialgia no es una enfermedad real”

Ya has oído mal. La causa de la fibromialgia todavía se está estudiando y la cantidad de la investigación va a la zaga de otras condiciones de salud debido a la falta de entendimiento histórico. Pero eso no significa que sea menos real durante casi 6 millones de personas con fibromialgia en los Estados Unidos solamente.

La fibromialgia fue reconocida oficialmente como una enfermedad real por la industria de la salud de Estados Unidos a finales del año pasado, cuando se le concedió su propio código de diagnóstico y ha sido reconocido desde hace años por la Administración de la FDA y de la Seguridad Social.

# 4 “Usted sólo tiene que conseguir más ejercicio y ser más activo”

Si sólo fuera así de fácil. El hecho es que muchos enfermos de fibromialgia empujan los límites de su capacidad física por levantarse y tomar una ducha cada día.

Muchos lo hacen encontrar algún alivio en el yoga u otros ejercicios suaves como los aeróbicos de agua. Pero a menudo el tipo de esfuerzo que viene con el ejercicio no es una posibilidad.

# 5 “Es todo en su cabeza”

Hemos salvado el peor para el final. En realidad no, no lo es todo en mi cabeza. El dolor y la fatiga se encuentra en todo el cuerpo y, a veces siento que incluso mi duele el pelo! Sí, es tan malo y el hecho de que no se puede ver mi dolor no significa que no es una condición física. El estrés, la ansiedad y la depresión pueden hacer que todos los síntomas de dolor crónico peor, pero por lo general no causan el dolor.

Si ha llegado hasta aquí, es probable que sea un enfermo de fibromialgia o alguien que realmente quiere entender la fibromialgia para apoyar a alguien que aman. abrazos suaves a que si son los primeros y muchas gracias si usted es el último.

Loading...

126 thoughts on “5 cosas para no decir a alguien con fibromialgia

  1. My brother suggested I might like this website. He was entirely right.
    This post truly made my day. You can not imagine just how much time I had spent for this info!
    Thanks!

  2. Hiya! Quick question that’s entirely off topic. Do you know how to make your site mobile friendly?
    My site looks weird when viewing from my apple iphone.
    I’m trying to find a theme or plugin that might be able
    to resolve this problem. If you have any suggestions, please share.

    Thanks!

  3. Remarkable things here. I’m very happy to look your article.
    Thank you so much and I’m taking a look forward to
    contact you. Will you please drop me a e-mail?

  4. Thanks on your marvelous posting! I truly enjoyed
    reading it, you’re a great author. I will always bookmark your blog and definitely will come back in the foreseeable future.
    I want to encourage continue your great work, have a nice holiday weekend!

  5. Fine way of describing, and good piece of writing to take information on the topic of my presentation topic,
    which i am going to convey in college.

  6. I used to be suggested this website by way of my cousin. I’m not positive whether or not
    this post is written through him as nobody else understand such specific about my problem.
    You’re incredible! Thank you!

  7. Thanks for one’s marvelous posting! I seriously enjoyed reading it, you can be a great author.
    I will ensure that I bookmark your blog and may come back someday.
    I want to encourage you to continue your great
    work, have a nice holiday weekend!

  8. Hi, I do believe this is a great blog. I stumbledupon it 😉 I am going to come back once again since I saved as a favorite it.
    Money and freedom is the greatest way to change, may you be rich and continue to guide others.

  9. Hi there, I found your blog by means of Google at the same time as searching
    for a related topic, your website got here up, it seems
    great. I’ve bookmarked it in my google bookmarks.

    Hello there, just became alert to your weblog through Google, and located that it is really informative.
    I am going to be careful for brussels. I will appreciate for those who proceed this in future.
    Numerous other folks shall be benefited from your writing.
    Cheers!

  10. Heya i’m for the primary time here. I found this board and
    I to find It really helpful & it helped me out much.
    I hope to give something back and help others like you aided me.

  11. Pretty section of content. I just stumbled upon your web site and in accession capital to assert that I get in fact enjoyed account your blog posts.
    Any way I will be subscribing to your augment and even I achievement you
    access consistently rapidly.

  12. Pingback: Google
  13. I am curious to find out what blog platform you’re working with?
    I’m having some small security problems with
    my latest site and I’d like to find something more secure.
    Do you have any suggestions?

  14. Do you mind if I quote a couple of your articles as long as
    I provide credit and sources back to your webpage? My
    blog site is in the exact same area of interest as
    yours and my visitors would definitely benefit from some of the information you present here.

    Please let me know if this alright with you. Thank you!

  15. Hello! This is my first comment here so I just wanted to give a quick shout out and say I genuinely enjoy reading your posts.
    Can you recommend any other blogs/websites/forums that deal with the
    same topics? Thanks a lot!

  16. I will immediately clutch your rss feed as I can’t in finding your
    email subscription link or newsletter service.
    Do you’ve any? Kindly let me realize so that I may subscribe.
    Thanks.

  17. Pingback: bdsm toys
  18. Pingback: pornland
  19. Thanks for ones marvelous posting! I really enjoyed reading it, you’re
    a great author. I will remember to bookmark your blog and
    will eventually come back from now on. I want to encourage you to ultimately continue your great writing, have a
    nice morning!

  20. When I initially commented I clicked the “Notify me when new comments are added”
    checkbox and now each time a comment is added I get several emails with the same comment.
    Is there any way you can remove me from that service?
    Many thanks!

  21. Wow, incredible blog layout! How long have you been blogging for?

    you made blogging look easy. The overall
    look of your website is fantastic, let alone the content!

  22. Hey I know this is off topic but I was wondering if you knew of any widgets I could add to my blog
    that automatically tweet my newest twitter updates.
    I’ve been looking for a plug-in like this for quite some time and was hoping maybe you would have
    some experience with something like this. Please let me
    know if you run into anything. I truly enjoy reading your blog and I look forward to your new updates.

  23. I simply could not depart your web site before suggesting that I really loved the
    usual information a person supply to your guests? Is gonna be back continuously to inspect new posts

  24. Pingback: Cialis
  25. Heya i’m for the first time here. I came across this board and I find It truly useful & it helped me out much.
    I hope to give something back and help others like you aided
    me.

  26. Today, I went to the beach front with my children. I found a sea shell and gave
    it to my 4 year old daughter and said “You can hear the ocean if you put this to your ear.” She placed the shell
    to her ear and screamed. There was a hermit crab inside and it pinched her ear.

    She never wants to go back! LoL I know this is totally off topic but I had to tell someone!

  27. Hi there excellent website! Does running a blog like this take a lot of work?
    I have very little understanding of programming however I
    was hoping to start my own blog in the near future.
    Anyhow, should you have any ideas or techniques for new blog owners please share.

    I understand this is off subject however I just had
    to ask. Appreciate it!

  28. I feel that is among the so much significant info for me.
    And i’m happy studying your article. However wanna observation on few basic things, The web site style
    is great, the articles is actually great : D. Just right activity, cheers

  29. Hey there! I could have sworn I’ve been to this website
    before but after browsing through some of the post I realized it’s new to me.
    Nonetheless, I’m definitely glad I found it and I’ll be book-marking and checking back
    often!

  30. Pingback: international
  31. Very great post. I simply stumbled upon your blog and
    wanted to mention that I’ve truly loved browsing
    your blog posts. In any case I’ll be subscribing in your feed and I am
    hoping you write once more soon!

  32. If some one needs expert view regarding blogging and site-building after that i advise him/her to go
    to see this webpage, Keep up the fastidious work.

  33. With havin so much written content do you ever run into any problems of plagorism or copyright infringement?
    My blog has a lot of unique content I’ve either authored myself or outsourced but it seems a lot of it is
    popping it up all over the web without my agreement.

    Do you know any methods to help protect against content from
    being stolen? I’d genuinely appreciate it.

  34. I do not even know how I ended up here, but I thought this post was great.

    I do not know who you are but certainly you’re going
    to a famous blogger if you aren’t already 😉 Cheers!

  35. I just like the helpful information you supply in your articles.
    I will bookmark your blog and test again here frequently.
    I am reasonably sure I will be informed plenty of new stuff right here!
    Good luck for the next!

  36. Magnificent website. A lot of helpful info here. I am sending it to several
    buddies ans additionally sharing in delicious. And obviously, thank you for your effort!

  37. I’ve been browsing on-line more than three hours as of late, but I by no means discovered any fascinating article like yours.
    It is pretty worth sufficient for me. In my opinion, if all website owners
    and bloggers made just right content as you probably did, the internet can be a lot more
    useful than ever before.

  38. I am really impressed with your writing skills as well as with the layout on your blog.
    Is this a paid theme or did you customize it yourself?

    Anyway keep up the excellent quality writing, it is rare to see
    a great blog like this one nowadays.

  39. Your style is very unique in comparison to other people I’ve read stuff from.
    Thanks for posting when you’ve got the opportunity, Guess I’ll just book
    mark this web site.

  40. We are a group of volunteers and opening a
    new scheme in our community. Your site provided us with valuable info to work on. You’ve done an impressive job
    and our whole community will be grateful to you.

  41. Undeniably believe that which you said. Your favorite justification seemed to be on the
    internet the easiest factor to have in mind of. I say to
    you, I certainly get annoyed while other people consider concerns that they just don’t recognize about.
    You managed to hit the nail upon the top and outlined out the entire thing with no need side-effects , other folks could take a signal.
    Will likely be back to get more. Thank you

  42. Pretty nice post. I just stumbled upon your blog and wanted to say that I’ve really enjoyed surfing around your blog posts.
    After all I’ll be subscribing on your feed and I am hoping
    you write once more soon!

  43. Pingback: minoxidil 15%
  44. Hey! I know this is kind of off topic but I was wondering
    if you knew where I could get a captcha plugin for my comment form?

    I’m using the same blog platform as yours and I’m having trouble finding one?
    Thanks a lot!

  45. What’s Going down i’m new to this, I stumbled upon this I have found It absolutely helpful and
    it has helped me out loads. I am hoping to contribute &
    help different customers like its helped me. Good job.

  46. Pingback: Pakistani Suits
  47. Thank you, I have recently been looking for information about this subject for a while and yours is the greatest I
    have discovered so far. But, what about the bottom line? Are you sure in regards to the source?

  48. Nice blog! Is your theme custom made or did you download it from
    somewhere? A design like yours with a few simple adjustements would really make my blog stand out.

    Please let me know where you got your theme. Bless you

  49. Pingback: sexboer
  50. Pingback: iptv japan tv

Leave a Reply

Your email address will not be published. Required fields are marked *