Fibromialgia | “Sonrío en las fotos, pero no paso un día sin dolor

Georgina Harvey tiene 28 años y no ha pasado un solo día sin dolor debido a la fibromialgia. Aquí está su testimonio

¿Cuándo sentiste el dolor la última vez?

De todos modos, un dolor de cabeza, una contractura del hombro, cálculos renales o un dedo del pie, es probable que se haya recuperado.

Firbomialgia BBC
Pero imagine lo que debe ser   levantarse todos los días en agonía  , sabiendo que esta incomodidad seguramente no desaparecerá.
Esta es la vida de las personas que viven con dolor crónico. Muchos se sienten frustrados porque sus síntomas parecen invisibles para los demás y, a menudo, las personas no los comprenden o los subestiman. Septiembre es el mes de la concientización internacional sobre el dolor y para comprender mejor cómo vivir con esta afección. Georgina Harvey, una mujer británica de 28 años con   fibromialgia  , para compartir su historia.

– “Es como todas las terminaciones nerviosas quemadas” –

“Una mañana de julio de 2016, me desperté como siempre, pero cuando traté de moverme, sentí un dolor muy intenso atravesando mi cuerpo.

Es como si todas las terminaciones nerviosas estuvieran quemadas y   solo pudiera gritar  .

Firbomialgia BBC

La sonrisa en las fotos no muestra el dolor que Georgina Harvey ha sufrido todos los días durante cuatro años. (Foto: BBC)

Mi madre vino corriendo a mi habitación, me movió hacia un lado y se quedó conmigo hasta que la sensación desapareció. Sabíamos que tenía una   epidemia de fibromialgia  , pero fue la peor que tuvo desde su diagnóstico, hace dos años.

Mi problema comenzó con la necesidad de estirar el cuello a la edad de 19 años, poco después de la meningitis.

Después de eso, se convirtió en una sensación de hormigueo en los hombros y un dolor profundo en la espalda.

Pensé que era una mala postura, pero cuando tuve 21 años,   el dolor fue casi constante  .

Me hicieron radiografías, análisis de sangre y resonancias magnéticas, pero no se vio nada.

Me dieron analgésicos potentes y el médico aumentó la dosis o el tipo cada vez que el dolor se hizo insoportable.

Describí la incomodidad   como el peor dolor abdominal imaginable  , pero en la espalda, asociado con una intensa presión en el pecho como si estallara en mis costillas.

Cuando la morfina fue la única solución que me dediqué, me dieron baja por enfermedad y me remitieron a un reumatólogo, lo que me condujo a mi diagnóstico.

Firbomialgia BBC

“El impacto ha estado en todo: trabajo, ejercicio, vida social”, dice Georgina. (Foto: Getty)

Explicó qué es la fibromialgia:   dolor crónico debido   a un trastorno del sistema nervioso central, pero dijo que no había un tratamiento o tratamiento específico, sino solo maneras de tratar el problema.

Pasé años intentando hacer las cosas que proponía: pilates, yoga, natación, fisioterapia y terapia cognitivo-conductual, pero nada calmó el dolor.

Aunque fue un alivio tener finalmente un diagnóstico de lo que me estaba pasando, me sentí devastado al pensar que sería algo con lo que debería vivir.

– “Afecta todo” –

Hoy, el dolor se extendió a mis caderas y pies y también tuve problemas estomacales.

Las actividades diarias como hablar por teléfono, usar un sostén o simplemente sentarse en una silla pueden desencadenar   un brote de dolor  y tomar una ducha puede ser agotador.

Firbomialgia BBC

El dolor le da a Georgina una sensación de pesadez mental que le impide pensar con claridad. (Foto: Getty)

Nunca me siento descansado porque la fibromialgia me hace dormir y genera   una niebla cerebral  , una sensación de pesadez mental que me impide pensar con claridad cuando tengo dolor.

Siempre he sido un poco tímido, pero ahora es aún más difícil para mí tener conversaciones. En general, creo que eso me convirtió en una persona ansiosa porque siempre estoy a la vanguardia.

El impacto ha estado en todo: trabajo, ejercicio, vida social. La recomendación que me hacen es para “seguir moviéndose”, pero   cuando tengo un mal episodio, no puedo hacer nada  , así que es un círculo vicioso.

Cuando hago proyectos, tengo que pensar que si tengo que estar de pie o sentado y cuánto tiempo tengo que irme de casa.

La mayoría de las veces, si puedo, trato de seguir adelante con el plan porque no quiero que el dolor se detenga o mis amigos piensan que lo siento.

Pero muchas veces, tengo que mudarme a un lugar aislado, generalmente un retrete, cuando el agotamiento y el dolor son demasiado fuertes.

– Administrar el dolor –

Algunas   cosas pueden hacerme sentir mejor  , como una botella de agua caliente o una manta suave. De hecho, estoy obsesionado con cosas que generan bienestar o tienen un buen toque, porque mi cuerpo es muy sensible.

También me gusta caminar, pero tengo que hacerlo a mi propio ritmo. Me ayuda a prevenir epidemias y siempre mejora mi estado de ánimo.

Firbomialgia BBC

A veces una botella de agua caliente ayuda. (Foto: iStock)

El año pasado, dejé mi trabajo en Londres, en marketing de eventos, para evitar el viaje redondo de 90 minutos y eso marcó una diferencia en mi bienestar.

Aunque   nunca tengo un día totalmente indoloro  , algunos son más fáciles de manejar que otros. Siempre recuerdo que hay personas que sufren mucho más que yo. Mi familia también me anima. Vivo con mis padres y me dan mucho apoyo emocional.

Mi novio también está haciendo todo lo posible para ayudarme, pero me siento culpable cuando mi condición afecta nuestra relación. Recientemente, después de una cena romántica, nos dirigimos al automóvil, pero hacía frío en la carretera y el choque casi me hizo caer al suelo.

Para mi es importante para difundir información sobre cómo vivir con el dolor crónico, ya que cada vez que digo que he oído hablar fibromialgianadie sobre el problema y la forma en que es “invisible”,   por desgracia, no ungrand número de estigma  . La gente lo subestima y varios jefes me dijeron que no lo entendían.

En cualquier caso, entiendo: hago bromas yo mismo. No bebo cuando camino y publico fotos sonriendo en Instagram. Pero estas imágenes no muestran que estaba bajo los efectos de los analgésicos más fuertes que ni cuando llego a casa, me pongo a llorar.

No quiero que mi condición defina quién soy. Sí, es parte de mí, pero tengo la determinación de no dejar que me domine.

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