Mijn eindeloze pijn: leven met fibromyalgie

Kirsty Young, gastheer van Desert Island Discs, heeft bijgedragen aan het verhogen van het bewustzijn over de pijnlijke en slopende toestand, maar is nog steeds onbekend

Beeldresultaat voor Mijn eindeloze pijn: leven met fibromyalgie

Ik leef met een slecht begrepen medische toestand, vaak onzichtbaar, wat betekent dat mijn leven een beetje Russisch is. Ik weet nooit van de ene week op de andere, of zelfs van de ene dag op de andere, hoe ik zal zijn.

Neem de laatste maand. Ik heb een paar behoorlijk goede weken achter de rug, waar ik naar buiten kon gaan en wat extra dingen kon doen, zoals vrienden ontmoeten. Dit heeft echter ook zijn beloning en voor een paar dagen heb ik in bed gelegen zonder het huis te kunnen verlaten.

Dit jojakken van de symptomen is typerend voor de ervaring van een patiënt met fibromyalgie. Het is een van de meest voorkomende chronische pijnaandoeningen in de wereld, heeft naar schatting een miljoen slachtoffers in het Verenigd Koninkrijk en is toch gehuld in mysterie. Vorige week kwam ze in het publieke bewustzijn toen  Desert Island-  platenkunstenaar Kirsty Young zei dat ze wat tijd vrij zou nemen omdat ze de conditie heeft. Vorig jaar onthulde Lady Gaga dat ze een slachtoffer was.

Mijn fibromyalgie begon toen ik 24 jaar oud was, kort na de geboorte van mijn dochter in november 1993. Het gebeurde tot mei 2005 om een ​​diagnose te stellen. In die 12 jaar kreeg ik te horen dat mijn symptomen te wijten waren aan verschillende soorten artritis, depressie en meer dan eens dat ze allemaal in mijn hoofd waren. Het was een zeer frustrerend moment, vooral toen alle tests en röntgenfoto’s nog duidelijk waren.

Toen ik eindelijk mijn diagnose kreeg, was het een grote opluchting om een ​​naam te hebben voor wat ik meemaakte. Die opluchting nam echter af toen ik me al snel realiseerde dat veel mensen fibromyalgie niet als een echte ziekte beschouwen. Als een aandoening geen medische test heeft om dit te bevestigen, bestaat die voorwaarde niet, geloven ze.

Mijn belangrijkste symptomen zijn ernstige en gegeneraliseerde pijn, chronische vermoeidheid, cognitieve stoornissen en geheugenproblemen (we noemen het ‘fibro-mist’), slaapproblemen en het prikkelbare darm syndroom, maar er zijn er veel meer die me in verschillende mate beïnvloeden. Zoals veel mensen met fibromyalgie, kan ik veel beter zien dan ik, en daarom wordt de aandoening vaak omschreven als een onzichtbare ziekte. Omdat je er niet ziek uitziet of omdat er geen duidelijke oorzaak is voor symptomen, geloven mensen misschien niet dat je zo ziek bent als je zegt, en dit ongeloof kan komen van medische professionals, familie en vrienden, maar ook van mensen vreemd

Meestal gebruik ik krukken om te wandelen of mijn scootmobiel voor langere afstanden. Mijn balans en mijn ruimtelijke bewustzijn zijn erg slecht, dus ik zou kunnen wiebelen, struikelen en vallen als ik ze niet gebruik. Mensen hebben de neiging om te denken dat je ofwel een loophulpmiddel moet gebruiken of niet. Maar met fibromyalgie heeft u het misschien op een dag nodig, en niet de volgende dag.

Gelukkig zijn mijn symptomen op een beheersbaar niveau, dankzij een combinatie van medicijnen, supplementen, complementaire therapieën en zelfcontrole-technieken die ik in de loop van de jaren heb geleerd. Ik kreeg ook veel steun van familie en vrienden, en ik ben stichtend lid en secretaris van mijn lokale steungroep. Dit leidde me tot vrijwilliger voor Fibromyalgia Action UK, waar ik nu als part-time beheerder werk. Ik doe ook mijn best om mijn hobby van vakmanschap te behouden: haak, brei, kruissteek en maak kaarten.

Ik denk dat iedereen met fibromyalgie een rol speelt door het publiek te vertellen over de aandoening en hoe dit ons beïnvloedt. Ieder van ons heeft verschillende symptomen en wordt in verschillende mate beïnvloed, en opleiding en bewustzijn is de manier om anderen te laten begrijpen wat we doormaken.

Wat me hoop geeft, is dat in de toekomst de oorzaak bekend zal worden en dat er effectieve behandelingen zullen zijn. Op dit moment worden de symptomen individueel behandeld en zijn de services afhankelijk van waar u woont. En er zijn nog steeds te veel gezondheidswerkers die de aandoening verachten.

Op een dag hoop ik dat wanneer iemand vraagt ​​wat verkeerd is en antwoordt: “Fibromyalgie”, ik het antwoord niet zal ontvangen: “Fibro, wat?”

Loading...

135 thoughts on “Mijn eindeloze pijn: leven met fibromyalgie

  1. I am really enjoying the theme/design of your weblog. Do you
    ever run into any browser compatibility issues?
    A small number of my blog readers have complained about my blog not operating correctly
    in Explorer but looks great in Opera. Do you have any ideas to help fix this problem?

  2. Great blog! Is your theme custom made or did you
    download it from somewhere? A theme like yours with a few simple tweeks would really make my
    blog jump out. Please let me know where you got your theme.
    Bless you

  3. Thanks for a marvelous posting! I really enjoyed reading it, you’re a great author.

    I will ensure that I bookmark your blog and will
    often come back later in life. I want to encourage you to continue your great
    job, have a nice day!

  4. Pretty nice post. I just stumbled upon your weblog and wished to say that I
    have truly enjoyed browsing your blog posts. In any
    case I will be subscribing to your rss feed and I
    hope you write again very soon!

  5. Hi! I know this is kinda off topic but I was wondering if you knew where I
    could locate a captcha plugin for my comment form?

    I’m using the same blog platform as yours and I’m having difficulty finding one?
    Thanks a lot!

  6. We absolutely love your blog and find most of
    your post’s to be precisely what I’m looking for.
    Do you offer guest writers to write content to suit your needs?
    I wouldn’t mind creating a post or elaborating on a few of the subjects
    you write concerning here. Again, awesome weblog!

  7. It’s really a nice and helpful piece of info.
    I am happy that you shared this helpful information with
    us. Please keep us up to date like this. Thanks for sharing.

  8. excellent points altogether, you just gained a new reader.
    What might you suggest in regards to your submit that you simply made a few
    days in the past? Any positive?

  9. I loved as much as you will receive carried out right here.
    The sketch is attractive, your authored material stylish.
    nonetheless, you command get got an impatience over
    that you wish be delivering the following. unwell unquestionably come more formerly again since exactly the same nearly very
    often inside case you shield this increase.

  10. Hello! I’ve been reading your blog for a long time now and finally got the bravery to go
    ahead and give you a shout out from Dallas Tx!
    Just wanted to tell you keep up the great job!

  11. Excellent post but I was wanting to know if you could
    write a litte more on this topic? I’d be very grateful if you could elaborate a little bit more.
    Cheers!

  12. I’m truly enjoying the design and layout of your
    site. It’s a very easy on the eyes which makes it much more enjoyable for me to come here and visit more often. Did you hire out a designer to create your theme?
    Great work!

  13. I seriously love your blog.. Very nice colors & theme. Did
    you build this web site yourself? Please reply back as I’m looking to create my very own site and would like to know where you got this from or
    what the theme is named. Many thanks!

  14. Pingback: Google
  15. I know this if off topic but I’m looking into starting my own blog and was curious what all is required to get set up?
    I’m assuming having a blog like yours would cost a pretty penny?

    I’m not very web smart so I’m not 100% sure. Any recommendations or advice would be greatly
    appreciated. Kudos

  16. Hi! I could have sworn I’ve been to this website before but after browsing through some of the post I
    realized it’s new to me. Anyhow, I’m definitely glad I found it and I’ll
    be book-marking and checking back frequently!

  17. Your style is unique compared to other people I’ve read stuff
    from. Thank you for posting when you’ve got the opportunity,
    Guess I’ll just book mark this page.

  18. You’re so interesting! I do not think I’ve read something like that before.

    So good to discover somebody with genuine thoughts on this subject matter.
    Seriously.. thanks for starting this up. This site is
    something that is needed on the internet, someone with
    a little originality!

  19. Good day! I could have sworn I’ve visited this blog before but after browsing through many of the articles I realized it’s new to me.

    Regardless, I’m definitely delighted I discovered it and I’ll be book-marking it and checking back regularly!

  20. Wonderful article! This is the type of info that should be
    shared across the internet. Shame on the search engines for not positioning
    this submit upper! Come on over and seek advice from my web site .
    Thanks =)

  21. I am really loving the theme/design of your website.

    Do you ever run into any browser compatibility problems?
    A handful of my blog audience have complained about my blog not operating correctly in Explorer
    but looks great in Safari. Do you have any tips to help fix this issue?

  22. Good day! I could have sworn I’ve visited this blog before but after looking at some
    of the posts I realized it’s new to me. Anyways, I’m definitely happy I
    stumbled upon it and I’ll be bookmarking it and checking back frequently!

  23. Hello there, I discovered your site by the use
    of Google while searching for a comparable matter, your website came up, it seems to be good.

    I have bookmarked it in my google bookmarks.
    Hi there, simply changed into aware of your blog via Google,
    and located that it’s really informative. I’m gonna be careful for brussels.

    I’ll be grateful for those who continue this in future.
    Lots of folks will probably be benefited from your writing.
    Cheers!

  24. I’m very pleased to discover this website. I want to to
    thank you for ones time just for this fantastic read!! I definitely loved every bit of it
    and I have you saved to fav to check out new things on your site.

  25. I must thank you for the efforts you have put in penning this website.

    I really hope to view the same high-grade content from you in the future as well.

    In truth, your creative writing abilities has encouraged me to get my own blog now 😉

  26. I was suggested this web site by my cousin. I am not sure whether this
    post is written by him as no one else know such detailed about my difficulty.
    You are amazing! Thanks!

  27. you are truly a just right webmaster. The website loading pace is amazing.

    It seems that you are doing any unique trick.

    Furthermore, The contents are masterpiece. you have performed a great job on this subject!

  28. I know this if off topic but I’m looking into starting my own blog and was wondering
    what all is required to get setup? I’m assuming having a
    blog like yours would cost a pretty penny? I’m not very
    web smart so I’m not 100% positive. Any tips or advice
    would be greatly appreciated. Thank you

  29. Hey There. I found your blog using msn. This is
    an extremely smartly written article. I’ll make sure to bookmark it
    and return to learn extra of your helpful info. Thank you
    for the post. I’ll definitely comeback.

  30. A motivating discussion is worth comment. There’s no doubt that
    that you need to write more on this subject, it might not be a taboo subject but typically folks don’t discuss these subjects.
    To the next! Kind regards!!

  31. When I initially commented I clicked the “Notify me when new comments are added” checkbox
    and now each time a comment is added I get three emails
    with the same comment. Is there any way you can remove me
    from that service? Cheers!

  32. You actually make it appear so easy with your presentation but I to find this matter to be really one thing that I think I’d by no means understand.
    It seems too complex and very vast for me. I am having a look ahead in your subsequent post, I will try
    to get the hold of it!

  33. I’m not that much of a online reader to be honest but your blogs really
    nice, keep it up! I’ll go ahead and bookmark your website
    to come back down the road. Many thanks

  34. I seriously love your website.. Pleasant colors & theme.

    Did you develop this web site yourself? Please reply back as I’m looking to create my own personal
    website and would love to find out where you got this
    from or just what the theme is named. Kudos!

  35. Its like you read my mind! You appear to know so much about this,
    like you wrote the book in it or something.

    I think that you could do with a few pics to drive the message home
    a little bit, but other than that, this is great blog.
    A great read. I will definitely be back.

  36. Hi there, I do think your blog could possibly be having web
    browser compatibility problems. Whenever I look at your web site in Safari, it looks fine however, if opening in I.E., it has some overlapping issues.
    I merely wanted to give you a quick heads up! Apart from that, fantastic website!

  37. I do consider all of the concepts you’ve offered for your post.

    They’re really convincing and will definitely work.
    Nonetheless, the posts are very short for beginners. May you
    please prolong them a bit from subsequent time? Thank you
    for the post.

  38. Yesterday, while I was at work, my cousin stole my iphone and tested to see if
    it can survive a thirty foot drop, just so she can be a
    youtube sensation. My iPad is now broken and she has 83 views.

    I know this is entirely off topic but I had to share it
    with someone!

  39. Hello, i think that i saw you visited my weblog so i came to
    go back the choose?.I’m trying to in finding issues to enhance my web site!I assume its adequate to make use of some of your ideas!!

  40. I have been exploring for a bit for any high quality articles or weblog posts in this sort of area
    . Exploring in Yahoo I finally stumbled upon this website.
    Studying this info So i’m satisfied to exhibit that I have a very
    excellent uncanny feeling I discovered just what I needed.
    I so much certainly will make sure to don?t omit this site and provides it a glance on a constant basis.

  41. I was curious if you ever thought of changing the structure of your website?

    Its very well written; I love what youve got to
    say. But maybe you could a little more in the way of content so people could connect with it
    better. Youve got an awful lot of text for only having 1 or
    2 images. Maybe you could space it out better?

  42. Simply wish to say your article is as astounding.
    The clearness in your post is just nice and i could
    assume you are an expert on this subject. Fine with your permission let me
    to grab your feed to keep updated with forthcoming post. Thanks
    a million and please continue the rewarding work.

  43. Terrific work! This is the kind of information that are supposed to be shared around the web.
    Disgrace on the search engines for now not positioning this submit upper!
    Come on over and discuss with my site . Thank you =)

  44. Excellent goods from you, man. I’ve understand your stuff previous to
    and you’re just extremely wonderful. I really like what you have acquired here, certainly
    like what you are stating and the way in which you say it.
    You make it entertaining and you still take care of to keep it sensible.
    I can not wait to read far more from you. This is actually a terrific website.

  45. Pingback: kingcock dildo
  46. Hi there it’s me, I am also visiting this web page on a regular basis, this web page is genuinely good and the people are in fact sharing good thoughts.

  47. May I simply just say what a relief to uncover someone who really knows what they’re discussing online.
    You definitely realize how to bring a problem to light and make it important.

    More people have to look at this and understand this side of
    the story. I can’t believe you are not more popular since
    you surely possess the gift.

  48. Pingback: Fashion Station
  49. Pingback: sexboer
  50. Pingback: liteblue usps gov
  51. Pingback: 7 inch dildo
  52. An outstanding share! I have just forwarded this onto a
    colleague who was doing a little homework on this. And he in fact bought me lunch simply
    because I discovered it for him… lol. So allow me to
    reword this…. Thank YOU for the meal!! But yeah,
    thanx for spending the time to discuss this issue here on your website.

  53. We’re a gaggle of volunteers and starting a brand new scheme in our community.
    Your website provided us with valuable information to work on. You’ve
    performed a formidable task and our entire group will probably be grateful to you.

  54. My relatives every time say that I am wasting my time here at web, however I know I am getting know-how everyday by reading thes good
    articles.

Leave a Reply

Your email address will not be published. Required fields are marked *