J’AI LA FIBROMYALGIE, EST-CE QUE JE LE DIT OU JE LE CACHE?

Si vous souffrez de  fibromyalgie,  vous avez été en mesure de parfaitement comprendre le titre de cet article. Le temps nécessaire à un patient atteint de fibromyalgie pour connaître son diagnostic est de 5 ans en moyenne. Bien qu’il puisse s’étendre au fil du temps de nombreuses années. Une fois que vous avez un nom, votre maladie commence une autre épreuve.

En commençant par votre médecin qui dans de nombreux cas ne comprend pas la maladie et ne connaît donc pas la douleur extrême que vous souffrez, il n’a pas de solution à ces douleurs et vous dit de continuer votre vie, de prendre des analgésiques et des antidépresseurs. comme tu peux

L’ignorance de la maladie affecte le patient

Votre famille et vos amis n’ont pas d’informations pour connaître le degré de douleur que vous souffrez, en outre le médecin lui-même indique qu’ils devraient vous encourager à suivre une vie normale et vous laisser des bêtises et des lamentations.

Vous commencez à chercher des informations et vous rencontrez des personnes qui souffrent de la maladie depuis des années et certains d’entre eux conseillent même de ne pas vous dire que vous souffrez de fibromyalgie parce que vous vous exposez au ridicule, aux mauvais conseils et même au licenciement.

L’incompréhension de cette maladie est très difficile

Pourquoi les patients diagnostiqués par d’autres maladies sont soutenus par la société, les amis et la famille, et un patient fibromyalgique se sent rejeté par tous?
La fibromyalgie est une maladie très grave, la personne qui souffre ressent de la douleur dans tout son corps, en commençant par les migraines, la douleur cervicale, la douleur au visage, la douleur dans les bras, les mains, les jambes, les genoux, les pieds.

Il ne peut pas se reposer la nuit, bien qu’il se couche très fatigué parce que beaucoup d’entre eux souffrent de fatigue chronique, ils ne peuvent pas dormir, plus de trois heures d’affilée à cause des douleurs corporelles et que leur cerveau a tendance à être éveillé. eux de se reposer et donc à la fois récupérer et se lever le lendemain se reposa.

Ils sont diagnostiqués avec la dépression, mais ce que les spécialistes ne comprennent pas, c’est que ces patients ne souffrent pas de dépression et de fibromyalgie, la dépression vient à la suite de la douleur, l’incompréhension et la fatigue.

Est-ce que je dis à ma famille et à mes amis que j’ai la fibromyalgie?
Pourquoi un patient cancéreux a le soutien et l’affection de toute la société et un patient de la fibromyalgie reçoit indifférence sinon rejet?

Cela doit changer
Vous devez partager votre état de santé avec votre famille et vos amis, vous devez être en mesure d’avoir leur compréhension, amour et, surtout, leur aide pour le surmonter, car il peut être surmonté.

Regardez ce qui est arrivé à une fille de 14 ans quand elle a pu parler de sa maladie à ses amis et camarades de classe
Marta est une jeune femme diagnostiquée de fibromyalgie et de fatigue chronique à l’âge de 11 ans, après beaucoup de souffrances. ans, elle souffrait de douleur dans son corps que personne ne pouvait dire d’où elle venait …

marta2

L’expérience de Marta racontée par elle-même à l’âge de 14 ans,
je pense que pouvoir en parler peut servir à s’améliorer, ce que j’ai pu vérifier personnellement il y a quelques jours. À l’Institut, nous devions parler pendant quatre minutes de n’importe quel sujet et l’expliquer en classe devant les camarades de classe.

Après avoir parlé avec ma mère, j’ai décidé qu’un sujet que je connaissais était la fibromyalgie, à la maison je répétais sur comment et ce que j’allais dire et il semblait que j’avais tout préparé, ce que je ne pouvais pas savoir était ce qui allait se produire.

Mon tour est venu et je suis allé au tableau, devant mes camarades de classe, tout semblait aller bien jusqu’au moment où, après avoir expliqué ce que la fibromyalgie était, les personnes touchées dans le monde et les symptômes de cette maladie, je devais dire qu’il y a deux ans on m’avait diagnostiqué une fibromyalgie, à ce moment je commençais à remarquer que les mots ne venaient pas et que j’étais noyé, je pleurais et le pire était que je ne pouvais pas m’arrêter, mes camarades regardaient moi sans savoir quoi faire et le Maître m’a dit de respirer et de me rassurer.

À ce moment-là, j’ai réalisé tout ce que j’avais souffert et à quel point j’étais devenu malade, je pensais aussi à mes parents et à tout ce qu’ils avaient souffert pour moi aussi. C’était comme si quelque chose avait soudainement été découvert en moi qui était caché en moi et qui était soudainement apparu à l’extérieur, la vérité est que j’étais surpris, détendu et que je me sentais bien. Avec l’aide de mes amis et de l’enseignant, j’ai pu continuer et terminer mon histoire que je n’avais jamais voulu dire à personne auparavant.

Mes parents se sont battus pour que d’autres personnes souffrant de fibromyalgie les écoutent et suivent leurs conseils, je les remercie pour leur lutte constante. Et à tous ceux qui en souffrent, je veux vous dire qu’avec de la persévérance, de la patience et de la volonté, vous pouvez le surmonter comme je l’ai vaincu.

Comment vous sentez-vous après avoir lu ce témoignage?
Vous remarquerez sûrement comment les larmes se pressent dans vos yeux, c’est votre propre histoire racontée à partir d’un âge où il est difficile de comprendre pourquoi vous êtes si malade.

Vraiment à tout âge, nous sommes prêts à faire face à toute maladie qui vous affecte tellement que cela vous empêche de “vivre”.
Ces mots ont été racontés par Marta après avoir suivi un traitement qui dans un an a réussi à calmer ces douleurs et à rendre le sourire.

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