Fibromyalgie, douleur et incapacité

Quand vous êtes malade de fibromyalgie, il semble qu’une partie de vous quitte pour ne plus jamais revenir. Rappelez-vous comment vous étiez avant et qui fait parfois vous tombez dans une fosse d’où salir.Pueden être des maladies très difficiles qui sont évidentes aux yeux des autres, ou comme dans le cas de la fibromyalgie, vos entrailles peuvent être détruits peu à peu, et cela n’est pas perceptible à l’œil nu, prenant ceci dans un vide où l’incompréhension et vos propres limites vous prennent jour après jour. Vous amener à un état d’invalidité totale.

Cette mai a été la Journée internationale de la fibromyalgie, c’est une maladie chronique qui produit principalement un sommeil agité, une fatigue extrême et une douleur musculo-squelettique diffuse. Bien que vraiment, la fibromyalgie a plus d’une centaine de symptômes.

Aujourd’hui, il affecte 5% de la population, principalement des femmes.

On ne sait pas encore exactement ce qui le produit, et il n’y a pas de remède; Ce qui est clair, c’est le niveau d’invalidité qui survient dans la vie des personnes touchées, ce qui, malheureusement, ne semble pas être pris en compte à l’heure actuelle.

Des activités telles que faire le lit sont les plus douloureux, quelque chose d’aussi nécessaire que le plaisir, que ce soit la danse ou tout simplement rire, conduit à une fatigue extrême qui provoque l’essoufflement des palpitations cardiaques et respiratoires. Jouer avec vos enfants ou courir après eux devient impossible.

Votre vie change complètement, vous cessez d’être ce que vous deviez devenir quelqu’un incapable de mener une vie normale.

Le manque de sommeil réparateur affecte votre esprit très négativement, produisant des lacunes, un manque de réflexes, une pensée claire et même un manque de coordination. Il a été démontré que les patients atteints de fibromyalgie ne maintiennent pas une phase REM linéaire pendant leur sommeil, mais qu’il existe des pics altérés qui les empêchent d’avoir un sommeil profond. C’est comme si tu n’avais pas dormi.

L’expression ” ça fait mal ” est répétée quotidiennement dans la vie du patient avec la  fibromyalgie.

Le combat commence quand vous sortez du lit tous les matins, avec  une fatigue extrême , la rigidité s’empare de votre corps, votre première minute de la journée est vraiment épuisante. Une fois que vous l’avez surmonté, il est possible que l’énergie ne dure que quelques heures, et après cela, vous êtes à nouveau épuisé, comme si vous terminiez une journée intensive avec garde incluse.

Le seuil de la  douleur  est si bas qu’une simple caresse ou câlin rend la peau brûlante, rendant le contact physique particulièrement compliqué.

Tout blesse , parfois même les ongles ou les cheveux. Douleurs semblent juste pour faire bouillir pour se reposer, mais ne peuvent pas se permettre de passer toute la journée au lit, donc je préfère de combattre et de mener une vie aussi normale que possible, bien que cela aura un impact négatif sur votre création vous nouvelle santé épidémies en raison de votre forte demande .

Vous vous sentez fatigué, vous vous sentez douloureux, impuissant, inutile.

Tout cela conduit à une profonde dépression que les antidépresseurs ne vous aident pas à sortir, la seule façon de surmonter serait cesser d’y penser, mais malheureusement il est impossible, vous devez travailler pour manger, payer votre maison et de garder vos enfants, et chaque effort, même minime, vous rappelle vos limites.

Les gens ne vous comprennent pas, vous avez une maladie invisible, vous ne pouvez pas la voir, mais vous la portez à l’intérieur. Et le pire n’est pas le manque de compréhension, le pire est qu’ils remettent en question ce que vous ressentez. Après quelques années de médecin à médecin jusqu’à ce que vous diagnostiquer  la fibromyalgie , vous devez faire face que vous ne croyez pas, ils vous appellent paresseux, ils vous disent que vous devenez la victime; Non seulement ils ne vous aident pas, mais ils vous enfoncent plus profondément dans la boue.

Le médicament n’aide pas beaucoup, ils réussissent seulement à vous étourdir plus, et que si vous êtes chanceux de ne pas être affecté par les effets secondaires. Ils recommandent l’exercice physique, dans vos limites, bien sûr. Vous pourriez être en mesure de s’étirer pendant cinq minutes, puis ne pas être en mesure de quitter le canapé pendant deux jours.

Vous ne pouvez pas travailler ou prendre soin de votre maison ou de votre famille. Mais vous ne pouvez pas non plus avoir une qualité de vie acceptable, car bien que la  fibromyalgie  soit une maladie chronique et cause un  handicap , elle n’est pas vraiment reconnue lors de la demande d’invalidité. Oui, c’est une maladie réelle, mais apparemment, pour certains, ce n’est pas quelque chose qui est quelque peu humiliant.

Peu de gens ont réussi à être entendus, mais pas avant d’avoir été forcés de présenter leur cas devant un juge, épuisant toutes leurs économies dans les avocats et la médecine légale, puis obtenant une pension minimum. Mais si la fibromyalgie vous affecte quand  vous êtes jeune, vous coupe la vie, vous n’avez rien à faire, parce que vous n’avez pas assez payé.

Et cela n’a pas d’importance si tout cela complique votre existence, si en dehors de tout ce qui a été mentionné précédemment, réduit considérablement les chances de posséder votre propre vie.

Beaucoup de jeunes voient quelque chose d’aussi simple que de former une famille impossible, non seulement à cause des craintes concernant leurs problèmes physiques, mais parce que les relations personnelles ou familiales ne se concrétisent généralement pas. Tout le monde ne l’accepte pas, encore moins apprendre à vivre avec une personne malade.

Les échecs du couple, du travail, de la famille … ou simplement le fait de ne pas être capable de faire ce que le corps demande ou ce que votre coeur vous envoie, non seulement provoquent des dépressions, mais tout cela conduit à se sentir détruit et beaucoup de gens a décidé de mettre fin à ses souffrances.

Ces personnes méritent d’être traitées avec les mêmes droits que toute personne, parce qu’elles sont des personnes, et seulement pour cette raison elles ont le droit d’avoir une vie décente, elles ont le droit de sourire, de jouir de la vie et de la famille, d’être comprises et acceptées, se sentir valorisé et respecté. Se sentir soutenu par les médecins et les institutions publiques. Ils ont le droit de se nourrir et de vivre sous un toit qu’ils peuvent se permettre.

Loading...

131 thoughts on “Fibromyalgie, douleur et incapacité

  1. Pretty nice post. I simply stumbled upon your weblog
    and wished to mention that I’ve truly enjoyed browsing your blog posts.
    In any case I’ll be subscribing for your rss feed and I’m hoping you
    write once more very soon!

  2. Howdy! Would you mind if I share your blog with my myspace group?

    There’s a lot of people that I think would really enjoy
    your content. Please let me know. Many thanks

  3. What’s Taking place i’m new to this, I stumbled upon this I’ve
    found It positively helpful and it has helped me out loads.

    I’m hoping to contribute & assist other users like
    its helped me. Great job.

  4. Hello there! This is my first visit to your blog! We are a group of volunteers and starting a new project in a community in the same niche.

    Your blog provided us beneficial information to work on. You have
    done a extraordinary job!

  5. With havin so much written content do you ever run into any problems
    of plagorism or copyright violation? My blog has a lot of exclusive content I’ve either created myself or
    outsourced but it appears a lot of it is popping it up all
    over the web without my permission. Do you know any ways to help prevent content from being ripped off?
    I’d truly appreciate it.

  6. Hey there! This is kind of off topic but I need some guidance from
    an established blog. Is it tough to set up your own blog?

    I’m not very techincal but I can figure things out pretty quick.
    I’m thinking about creating my own but I’m not sure where to start.
    Do you have any tips or suggestions? Cheers

  7. Excellent beat ! I would like to apprentice while you amend your website, how can i subscribe for a blog
    website? The account helped me a acceptable deal. I had been a little bit acquainted of this your broadcast offered bright clear concept

  8. Outstanding post but I was wanting to know if you could write
    a litte more on this topic? I’d be very grateful if you could elaborate a little bit more.

    Kudos!

  9. This is a very good tip especially to those fresh
    to the blogosphere. Brief but very precise info… Thank you for
    sharing this one. A must read post!

  10. Wow! This blog looks exactly like my old one!
    It’s on a completely different topic but it has pretty much the same page
    layout and design. Excellent choice of colors!

  11. Hey there! I know this is kinda off topic but I’d figured I’d ask.

    Would you be interested in trading links or maybe guest authoring a blog post or vice-versa?
    My website addresses a lot of the same topics as yours and I believe we could greatly
    benefit from each other. If you are interested feel free
    to shoot me an e-mail. I look forward to hearing from you!
    Great blog by the way!

  12. Magnificent website. Plenty of useful information here.

    I am sending it to some buddies ans also sharing in delicious.
    And certainly, thanks for your sweat!

  13. That is really attention-grabbing, You are a very skilled blogger.
    I’ve joined your rss feed and stay up for looking for
    extra of your magnificent post. Additionally, I’ve shared your site in my social networks

  14. Wow, superb weblog format! How lengthy have you been running a blog for?
    you make running a blog glance easy. The entire look of your site is
    fantastic, let alone the content material!

  15. Hmm it looks like your site ate my first comment
    (it was super long) so I guess I’ll just sum it up what I had written and say, I’m thoroughly enjoying your blog.

    I as well am an aspiring blog writer but I’m still new to everything.
    Do you have any recommendations for novice blog writers?
    I’d certainly appreciate it.

  16. Link exchange is nothing else however it is just placing the other person’s weblog link on your page at suitable place
    and other person will also do similar in favor of you.

  17. Excellent goods from you, man. I’ve understand your stuff previous to and
    you’re just too excellent. I really like what you’ve acquired here, really
    like what you’re saying and the way in which you say it.

    You make it enjoyable and you still take care of to
    keep it sensible. I can not wait to read much more
    from you. This is actually a terrific website.

  18. Sweet blog! I found it while searching on Yahoo News.
    Do you have any tips on how to get listed in Yahoo News? I’ve been trying for a while but I never seem to
    get there! Many thanks

  19. I just like the helpful info you supply for your articles. I’ll
    bookmark your blog and test once more right here frequently.
    I am slightly sure I’ll be informed a lot of new stuff right here!

    Good luck for the following!

  20. An outstanding share! I’ve just forwarded this onto a colleague who had been doing a little
    research on this. And he in fact ordered me lunch
    due to the fact that I found it for him…
    lol. So let me reword this…. Thank YOU for the meal!! But yeah, thanks for spending time to talk about this issue here on your website.

  21. Hey there! This post could not be written any better! Reading this
    post reminds me of my old room mate! He always kept chatting about this.

    I will forward this write-up to him. Pretty sure he will have a good read.

    Thank you for sharing!

  22. Hey! This is kind of off topic but I need some advice from an established blog.

    Is it hard to set up your own blog? I’m not very techincal but I can figure things
    out pretty fast. I’m thinking about setting up my own but I’m not sure where to begin. Do you have
    any points or suggestions? Many thanks

  23. Heya just wanted to give you a brief heads up and let you know
    a few of the images aren’t loading properly.
    I’m not sure why but I think its a linking issue.
    I’ve tried it in two different internet browsers and both show the same results.

  24. Normally I do not read article on blogs, however I wish to say that this write-up very pressured
    me to take a look at and do it! Your writing style has been surprised
    me. Thank you, quite great post.

  25. It’s a pity you don’t have a donate button!
    I’d most certainly donate to this excellent blog!
    I guess for now i’ll settle for book-marking and adding your
    RSS feed to my Google account. I look forward to fresh updates and will talk about this
    website with my Facebook group. Talk soon!

  26. Fantastic beat ! I would like to apprentice while you amend your web site, how can i subscribe for a blog web site?
    The account helped me a acceptable deal. I had been tiny bit acquainted of this your broadcast offered bright clear idea

  27. Wonderful blog! I found it while searching on Yahoo News.
    Do you have any tips on how to get listed in Yahoo News?
    I’ve been trying for a while but I never seem to get
    there! Thank you

  28. My spouse and I stumbled over here by a different page
    and thought I may as well check things out. I like what
    I see so now i am following you. Look forward to looking at your web page for a second
    time.

  29. I’m extremely impressed with your writing skills as well as with the layout on your weblog.
    Is this a paid theme or did you customize it yourself? Anyway keep up the excellent quality writing, it’s rare to see a great blog like this
    one nowadays.

  30. I have to thank you for the efforts you’ve put in writing this website.

    I’m hoping to see the same high-grade blog posts from you in the
    future as well. In truth, your creative writing
    abilities has inspired me to get my own blog now 😉

  31. I like the valuable info you provide in your articles.

    I will bookmark your weblog and check again here regularly.
    I’m quite sure I will learn many new stuff right here! Good luck for the next!

  32. Wow that was odd. I just wrote an really long comment but after I clicked submit my comment didn’t appear.

    Grrrr… well I’m not writing all that over again. Anyway, just wanted
    to say great blog!

  33. Greate article. Keep posting such kind of information on your page.
    Im really impressed by it.
    Hey there, You’ve done an excellent job. I will certainly digg it and
    in my view recommend to my friends. I am sure they will be benefited from
    this web site.

  34. Do you mind if I quote a few of your posts as long
    as I provide credit and sources back to your site?
    My website is in the exact same area of interest as
    yours and my users would certainly benefit from a lot of the information you present here.
    Please let me know if this ok with you. Cheers!

  35. I’m impressed, I have to admit. Rarely do I encounter a blog that’s both equally educative and entertaining,
    and let me tell you, you’ve hit the nail on the head.
    The problem is something which not enough folks are speaking intelligently about.

    Now i’m very happy that I found this during my search for something
    regarding this.

  36. Pretty section of content. I just stumbled upon your blog and in accession capital to assert
    that I acquire actually enjoyed account your blog posts. Anyway I’ll be subscribing to your augment and
    even I achievement you access consistently fast.

  37. Hey there! This is kind of off topic but I need some guidance
    from an established blog. Is it hard to set up your own blog?

    I’m not very techincal but I can figure things out pretty fast.
    I’m thinking about creating my own but I’m not sure where to start.

    Do you have any points or suggestions? Cheers

  38. Hey There. I found your blog using msn. This is a really
    well written article. I will make sure to bookmark it and return to read more of your useful info.
    Thanks for the post. I will definitely return.

  39. Just want to say your article is as astonishing. The clearness in your post is just great
    and i could assume you’re an expert on this subject.
    Fine with your permission allow me to grab your feed to keep updated with
    forthcoming post. Thanks a million and please keep up the gratifying work.

  40. I’m not that much of a internet reader to be honest but
    your blogs really nice, keep it up! I’ll go ahead and bookmark your website to come back in the future.
    Cheers

  41. I got this web site from my buddy who shared with me on the topic of this web page and now this time I am browsing this web page and reading very informative articles at this time.

  42. Admiring the persistence you put into your site and
    detailed information you provide. It’s nice to come across a blog every once
    in a while that isn’t the same old rehashed information. Excellent read!

    I’ve bookmarked your site and I’m including your RSS feeds to my Google account.

  43. I’m impressed, I have to admit. Rarely do I encounter a blog that’s both equally educative and amusing,
    and let me tell you, you’ve hit the nail on the head.
    The problem is an issue that not enough men and women are speaking intelligently about.
    I’m very happy that I found this during my search for something
    regarding this.

  44. Its like you read my mind! You appear to know a lot about this,
    like you wrote the book in it or something. I think that you can do with some pics to drive the
    message home a bit, but other than that, this is wonderful blog.
    A fantastic read. I will certainly be back.

  45. I was recommended this blog by my cousin. I’m not sure whether this post is written by
    him as nobody else know such detailed about my trouble.
    You’re wonderful! Thanks!

  46. Write more, thats all I have to say. Literally, it seems
    as though you relied on the video to make your point.
    You clearly know what youre talking about, why waste your intelligence on just posting videos to your site when you could be giving us something informative to read?

  47. You really make it appear so easy with your presentation but I in finding this matter to be actually something that I feel I’d never understand.
    It seems too complex and extremely large for me. I’m taking a look ahead in your
    subsequent put up, I will attempt to get the hold of it!

  48. Hello there, You have done a fantastic job. I
    will definitely digg it and personally recommend to my friends.
    I’m confident they’ll be benefited from this web site.

Leave a Reply

Your email address will not be published. Required fields are marked *