La fatigue dans la fibromyalgie n’est pas une simple fatigue normale

La fatigue ressentie lorsque vous souffrez de fibromyalgie dépasse la «fatigue normale», selon une récente publication dans la revue BMC – Troubles musculo-squelettiques.

Les chercheurs voulaient comprendre plus en détail la fatigue qui se produit dans la fibromyalgie et l’impact qu’elle a sur nos vies. Après avoir mené une série d’entrevues, ils ont analysé les résultats et développé un modèle conceptuel de fatigue fibromyalgie, qui comprend les éléments suivants:

1 Un sentiment de fatigue écrasant
2 Ce n’est pas amélioré par le repos ou le sommeil
3 Il n’est pas proportionnel à l’effort quotidien
4 Associé à un sentiment de faiblesse et de lourdeur
5 Influe sur la motivation et le désir de réaliser des activités
6 Difficulté à effectuer de longues tâches

Cela nous empêche de nous concentrer, de penser clairement et de nous souvenir des choses.

Pour ceux d’entre nous qui vivent avec ce type de fatigue, ce n’est pas nouveau. Cependant, il semble que ce modèle est un bon pas en avant. Le monde médical n’a pas une compréhension correcte des différents types de fatigue et a besoin d’un langage approprié pour les décrire.

Tout le monde se sent fatigué à un moment donné et la fatigue est l’une des principales plaintes que les médecins entendent. Ce modèle fournit une définition de la fatigue liée à la fibromyalgie, ce qui permet de la distinguer des autres types de fatigue.

Beaucoup d’entre nous sont atteints de fibromyalgie, nous avons éprouvé chaque niveau de fatigue de ce nouveau modèle, dans différentes variations, et presque certainement nous avons tous de l’expérience avec des médecins qui souvent ne comprennent pas la faiblesse que nous ressentons à cause de la fatigue.

Cela peut être un symptôme effrayant, dans la mesure où parfois il nous fait peur de marcher de peur de tomber pour sentir les jambes si faibles qu’il semble qu’elles ne pourraient pas nous soutenir. Et comme cette faiblesse va et vient, parfois cela ne semble même pas avoir beaucoup de sens.

Avec un peu de chance, ce nouveau modèle pourrait nous aider, nous et nos médecins, à mieux comprendre la fatigue liée à la fibromyalgie.

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