An Open Letter To My Loved Ones Need to Know About Life With Fibromyalgia

Via-The Mighty

An open letter to my friends and family:

It is difficult to explain fibromyalgia, osteoarthritis and chronic illness. It is more than constant pain – it is exhaustion, lack of energy and a multitude of other symptoms that make functioning each day really hard. Some days are better than others, and then I tend to overdo things to get them done.

It is like everything is amplified – temperature, smells, sounds, sensitivity to bright lights as well as pain. Just everything.

The thing is, no matter how hard I try, when the tank is empty, there are no reserves and tolerance levels become zilch. I have to eke out the energy I have, and it’s a juggle and quite often something I have to pay for later. I tend to prefer to be alone because social interaction has become arduous.

Some of the symptoms I experience are:

  • Widespread pain
  • Stiffness
  • Joint pain
  • Headaches
  • Diarrhea, upset stomach, digestive problems
  • Limited energy
  • Insomnia
  • Exhaustion
  • Depression
  • Anxiety
  • Nausea
  • Brain fog
  • Difficulty concentrating
  • Difficulty in speech, getting the right words out, stumbling over them
  • Eyesight fluctuations
  • Balance problems
  • Chronic sinusitis
  • Numbness and tingling in hands and feet
  • Swelling of face, hands and feet
  • Palpitations

I am doing the best I can. Some people don’t understand the illness. I have decided to speak up and out instead of covering up how I feel and am doing what I need to do to enable myself to live and cope as well as possible. This includes reducing stressors, not doing what I cannot comfortably do and so on.

I get the feeling some people are of the opinion that it cannot be that bad. Of course I am aware most people are not able to fully understand something unless it happens to them, but let me tell you, it is not that bad… it is a whole lot worse.

I struggle each and every day, so please ease up on the expectations, accept that I cannot do some things, respect there are limitations and don’t take things personally. I know it’s hard for someone who can clean the shower or toilet with ease, for example, to understand what it is like when everyday tasks take on mammoth proportions.

If you want to help, ask me – don’t assume you know what is best for me. Things are not always as they appear. I probably look quite well. Try not to judge unless you walk in my shoes. I don’t want sympathy, I just need you to try to understand.

I am doing the very best I can.

I’m learning that I have to do what is right for me, not what is best for everyone else, and if that offends you or tramples upon your sensibilities, I am sorry. I’ve gone past being careful not to upset anyone or hurt their feelings. I’m too tired for all that. I’m learning to say “no” more often.
Tony knows and understands. He has seen me at the end of my tether all too often lately when the pain is so bad I am beside myself and tears are falling as a consequence because there is nothing else for it.

If you are still unconvinced, have a talk with my doctor – she will put you right

Loading...

156 thoughts on “An Open Letter To My Loved Ones Need to Know About Life With Fibromyalgia

  1. Hello there, You’ve done an incredible job. I’ll certainly digg it and personally
    suggest to my friends. I am confident they’ll be benefited from this web
    site.

  2. Hi there, every time i used to check blog posts
    here in the early hours in the morning, because i like
    to gain knowledge of more and more.

  3. Hi, i think that i saw you visited my website
    thus i came to “return the favor”.I am attempting to
    find things to enhance my website!I suppose its
    ok to use a few of your ideas!!

  4. Hey there! Do you know if they make any plugins to safeguard
    against hackers? I’m kinda paranoid about losing everything I’ve worked hard on.
    Any recommendations?

  5. Hmm is anyone else having problems with the images on this
    blog loading? I’m trying to figure out if its a problem on my end
    or if it’s the blog. Any suggestions would be greatly appreciated.

  6. I absolutely love your blog and find a lot of your post’s to
    be exactly I’m looking for. Would you offer guest writers
    to write content available for you? I wouldn’t mind composing
    a post or elaborating on some of the subjects you write about here.
    Again, awesome blog!

  7. Hello every one, here every one is sharing such familiarity, thus it’s good to
    read this web site, and I used to go to see this webpage everyday.

  8. Attractive section of content. I just stumbled upon your weblog and in accession capital to assert that I acquire in fact enjoyed account
    your blog posts. Anyway I will be subscribing to your
    augment and even I achievement you access consistently rapidly.

  9. Howdy! Someone in my Facebook group shared this site with
    us so I came to look it over. I’m definitely enjoying
    the information. I’m book-marking and will be tweeting this to my followers!
    Terrific blog and wonderful style and design.

  10. I’m not that much of a online reader to be honest but your blogs really nice, keep it up!

    I’ll go ahead and bookmark your website to come back later.

    All the best

  11. Do you have a spam issue on this blog; I also am a blogger, and I was wanting to know your situation; we have developed some nice procedures and we are looking to swap techniques
    with other folks, why not shoot me an email if interested.

  12. I am really loving the theme/design of your website.
    Do you ever run into any web browser compatibility issues?
    A handful of my blog readers have complained about my site not operating correctly in Explorer but looks
    great in Firefox. Do you have any tips to help fix this issue?

  13. I am really inspired with your writing abilities and also with the layout on your weblog.

    Is that this a paid theme or did you modify it yourself?
    Either way stay up the excellent high quality writing, it’s uncommon to look a nice blog like this one these days..

  14. I really like your blog.. very nice colors & theme.
    Did you design this website yourself or did you hire someone to do it for you?
    Plz answer back as I’m looking to create my own blog and would like to know
    where u got this from. appreciate it

  15. Oh my goodness! Impressive article dude! Many thanks, However I am going through issues with your RSS.
    I don’t know why I am unable to join it. Is there anyone else having the same RSS problems?
    Anyone who knows the solution will you kindly respond?
    Thanx!!

  16. Normally I do not learn article on blogs, however I would
    like to say that this write-up very forced me to try and do so!
    Your writing taste has been amazed me. Thank you, very nice article.

  17. Attractive section of content. I just stumbled upon your website and in accession capital to assert that I
    acquire in fact enjoyed account your blog posts. Anyway I’ll be subscribing to your feeds and even I achievement
    you access consistently fast.

  18. Fine way of explaining, and pleasant piece of writing to obtain information regarding my presentation subject matter, which
    i am going to convey in school.

  19. With havin so much content do you ever run into any problems
    of plagorism or copyright infringement? My site has a lot of completely unique content I’ve either created myself or outsourced but it appears a lot of it is popping
    it up all over the internet without my agreement.

    Do you know any ways to help stop content from being stolen? I’d
    definitely appreciate it.

  20. I’m not sure exactly why but this web site is
    loading extremely slow for me. Is anyone else having this problem or is it a problem on my end?
    I’ll check back later on and see if the problem still exists.

  21. I’d like to thank you for the efforts you’ve put in writing this website.
    I really hope to check out the same high-grade content from you in the future as
    well. In truth, your creative writing abilities has inspired me to get my very
    own site now 😉

  22. Pretty great post. I simply stumbled upon your weblog and wished to say that I have really loved surfing around your weblog posts.
    After all I’ll be subscribing for your feed and I am
    hoping you write once more very soon!

  23. Hello! This is my first visit to your blog! We are a team of volunteers and starting a
    new initiative in a community in the same niche. Your blog provided us beneficial information to work on. You have done a marvellous job!

  24. each time i used to read smaller posts which also clear their motive, and that
    is also happening with this piece of writing which I am reading here.

  25. It’s actually a great and helpful piece of information.
    I’m happy that you simply shared this helpful information with us.
    Please keep us up to date like this. Thank you for sharing.

  26. Link exchange is nothing else but it is simply placing the
    other person’s webpage link on your page at suitable place and other person will
    also do similar in support of you.

  27. Wow, amazing blog structure! How long have you ever been blogging for?
    you make running a blog glance easy. The overall glance of your website
    is wonderful, let alone the content!

  28. I’ve been surfing online more than 2 hours today, yet I never found any interesting article
    like yours. It is pretty worth enough for me. In my view, if all webmasters and bloggers made good content as
    you did, the net will be much more useful than ever before.

  29. Fantastic items from you, man. I’ve have in mind your stuff prior to and you are simply
    extremely magnificent. I really like what you have obtained right here, really like
    what you are saying and the way by which you say it.
    You’re making it enjoyable and you still take care of to
    keep it wise. I cant wait to learn much more from you.
    That is really a terrific site.

  30. We stumbled over here different web address and thought I may as well check things
    out. I like what I see so i am just following you.
    Look forward to exploring your web page yet again.

  31. Howdy, I do think your site might be having internet browser compatibility
    problems. Whenever I take a look at your web site in Safari, it looks
    fine however, if opening in I.E., it’s got some overlapping issues.
    I simply wanted to provide you with a quick heads up!
    Aside from that, fantastic site!

  32. Hello there! Do you know if they make any plugins to assist with SEO?
    I’m trying to get my blog to rank for some targeted keywords but I’m not seeing very
    good gains. If you know of any please share. Thanks!

  33. Pingback: Google
  34. I have been exploring for a little bit for any high quality articles or weblog posts in this kind of
    space . Exploring in Yahoo I ultimately stumbled upon this web site.
    Reading this info So i’m satisfied to express that I’ve a very just right uncanny feeling I found out just what I needed.
    I most indubitably will make certain to do not forget
    this site and give it a glance on a continuing basis.

  35. Fantastic goods from you, man. I’ve understand your stuff previous to and
    you’re just extremely magnificent. I really like what
    you have acquired here, really like what you’re stating and the way in which you say it.
    You make it entertaining and you still take care of to
    keep it wise. I cant wait to read much more from you. This is actually a
    great web site.

  36. After looking over a number of the blog posts on your
    site, I really like your way of blogging. I
    saved it to my bookmark site list and will be checking back in the near future.

    Take a look at my website too and tell me how you
    feel.

  37. I’m excited to find this web site. I need to to thank you for your time for this particularly wonderful read!!
    I definitely savored every little bit of it and I have you bookmarked
    to check out new stuff in your website.

  38. Right here is the perfect site for anybody who would like to understand this topic.

    You understand so much its almost tough to argue with
    you (not that I really will need to…HaHa).
    You certainly put a fresh spin on a subject that’s been written about for ages.
    Great stuff, just excellent!

  39. Sweet blog! I found it while browsing on Yahoo News.
    Do you have any tips on how to get listed in Yahoo News?

    I’ve been trying for a while but I never seem to get
    there! Many thanks

  40. When I initially commented I clicked the “Notify me when new comments are added” checkbox and now each time
    a comment is added I get four emails with the same comment.
    Is there any way you can remove me from that service? Thanks a lot!

  41. Excellent post. I was checking continuously this blog and I’m impressed!

    Very useful information specially the last part 🙂 I care for such information much.
    I was seeking this certain information for a long time. Thank you and best of luck.

  42. I’m not that much of a online reader to be honest but your sites really nice,
    keep it up! I’ll go ahead and bookmark your website to come back later.
    Cheers

  43. I was curious if you ever considered changing the page layout of your website?
    Its very well written; I love what youve got to say.

    But maybe you could a little more in the way of content so people could
    connect with it better. Youve got an awful lot of text for only having
    one or two pictures. Maybe you could space it out better?

  44. Pingback: unboxing vibrator
  45. Hi there, just became aware of your blog through Google, and found that it is really informative.
    I’m going to watch out for brussels. I will be grateful if you continue
    this in future. Lots of people will be benefited from your writing.
    Cheers!

  46. obviously like your web-site however you have to test the
    spelling on several of your posts. A number of them are rife with spelling
    problems and I in finding it very bothersome to inform the reality on the other hand I’ll certainly come back again.

  47. I have learn a few good stuff here. Definitely worth bookmarking for
    revisiting. I surprise how much attempt you set to make this sort of wonderful informative site.

  48. hello!,I like your writing so a lot! proportion we communicate more about your article
    on AOL? I require a specialist in this area to
    unravel my problem. May be that is you! Taking a look forward to see
    you.

  49. Heya are using WordPress for your blog platform? I’m new to the blog world but I’m trying
    to get started and create my own. Do you need any html coding expertise to make your
    own blog? Any help would be greatly appreciated!

  50. Its like you read my mind! You seem to know so much about this,
    like you wrote the book in it or something.

    I think that you can do with a few pics to drive the message
    home a little bit, but instead of that, this
    is great blog. An excellent read. I will definitely be back.

  51. Pingback: large dildo orgasm
  52. Hello there! Do you know if they make any plugins to
    help with SEO? I’m trying to get my blog to rank for some targeted keywords but I’m not seeing
    very good gains. If you know of any please share. Thanks!

  53. Having read this I thought it was extremely enlightening.

    I appreciate you taking the time and effort to put this information together.

    I once again find myself spending way too much time both
    reading and commenting. But so what, it was still worth
    it!

  54. Hey just wanted to give you a quick heads up and let you know
    a few of the images aren’t loading properly.

    I’m not sure why but I think its a linking issue.
    I’ve tried it in two different browsers and both show the same results.

  55. Pingback: Google
  56. When I originally commented I clicked the “Notify me when new comments are added” checkbox and now each time a comment is added I get several e-mails with the same comment.
    Is there any way you can remove me from that service?

    Appreciate it!

  57. Definitely believe that which you said. Your favorite justification appeared to be on the net the simplest
    thing to be aware of. I say to you, I certainly get annoyed while people consider worries
    that they just don’t know about. You managed to hit the nail upon the top and also
    defined out the whole thing without having side-effects
    , people can take a signal. Will probably be back to get more.
    Thanks

  58. Pingback: Fashion Station
  59. Pingback: liteblue login
  60. Pingback: iptv a-box
  61. Pingback: porn
  62. Pingback: Don Juravin
  63. Pingback: milbemax til hund
  64. Pingback: sex toy review
  65. Pingback: viagra
  66. Pingback: döner hamburg
  67. continuously i used to read smaller posts which as
    well clear their motive, and that is also happening with this article which I am reading at this
    place.

  68. Pingback: YtMp3
  69. Thanks for the marvelous posting! I genuinely enjoyed reading it, you might be
    a great author.I will make certain to bookmark your blog and will come back down the road.
    I want to encourage you to definitely continue your great posts, have a nice
    day!

  70. I do believe all of the concepts you’ve offered in your post.
    They’re really convincing and can certainly work. Still, the posts are very brief
    for newbies. May just you please extend them a little from next time?
    Thanks for the post.

  71. Its like you read my mind! You seem to know so
    much about this, like you wrote the book in it or something.
    I think that you could do with a few pics to drive the message home a
    little bit, but instead of that, this is magnificent blog.
    A great read. I’ll certainly be back.

  72. I’ve been exploring for a little for any high-quality articles or blog posts in this sort of space .
    Exploring in Yahoo I finally stumbled upon this site.
    Reading this info So i am satisfied to show that I’ve a very just right uncanny feeling I found out just what I needed.
    I most certainly will make certain to don?t put out of your mind this website and provides it a glance on a
    relentless basis.

  73. Pingback: blk 418

Leave a Reply

Your email address will not be published. Required fields are marked *