Estoy harta de estar enferma con la enfermedad de la fibromialgia

Por: Dr. Heather Morris

Tener una enfermedad crónica como la enfermedad de la fibromialgia realmente te pasa factura, especialmente cuando tienes muchas otras cosas como yo. Aumenta y disminuye pero nunca desaparece, al menos no lo hace para mí. Ahora mismo debo decir que es tan malo como lo ha sido alguna vez. El nivel de dolor de mi Enfermedad de Fibromialgia me ha llevado tan lejos que incluso mi punto de vista positivo es sufrimiento. Estoy tan harto de estar enfermo con la enfermedad de fibromialgia. Mi único escape es el sueño que tengo, pero ahora el dolor de la enfermedad de la fibromialgia está torciendo mis sueños y no puedo escapar de allí ahora. Me despierto tan dolorida que me da ganas de gritar solo para moverme. Estoy tan cansado cuando me levanto como cuando estaba en la cama. El alivio parece estar escapándome en estos días.

Haz más ejercicio, eso es lo que dicen. No tienen idea de lo difícil que es hacer eso cuando cada movimiento te hace querer estremecerte con el dolor de la Fibromialgia Disease. Al caminar cualquier distancia, la columna vertebral se siente como si se desmoronara y se desintegrara. Hago lo que puedo, camino distancias cortas, hago levantamientos de piernas en mi silla, pero es difícil. Deseo que otros puedan entender lo difícil que es. Bajar de peso. Lo intento, realmente lo hago. Sin poder ser tan activo como necesitas ser, es algo muy difícil de hacer. Sé que mi peso, que se puso después de enfermar, lo empeora. También empeora mi autoimagen, lo que no ayuda en nada. Desearía poder perderlo y estoy tratando de hacerlo, pero es un proceso lento como lo siento yo.

Toma tus medicamentos Sí, lo prometo, tal como me dicen que haga, pero no ayuda lo suficiente. Los he echado de menos y tuve la suerte de no pasar el día acurrucado en una pelota en el piso, así que sé que ayudan, pero no están haciendo lo suficiente. Tiene que haber algo que ayude a devolverme la vida. ¿Depresión? Claro, lucho contra la depresión. Cuando no hay una parte de tu cuerpo que no duela todo el tiempo, es posible que también estés deprimido. Creo que aquellos de nosotros que trabajamos con esto somos mucho más fuertes de lo que la gente nos da crédito.

Ni siquiera puedo comer sin experimentar los síntomas. Como algo, me envía corriendo al baño. No hay un aspecto de la vida que la enfermedad de la Fibromialgia o el conjunto de condiciones coexistentes no afecten. Lo que sea, hay un efecto negativo que lo acompaña. Los síntomas se alimentan entre sí, y cada uno empeora los demás. Intento mantenerme positivo. Sé que esto pasará y me sentiré mejor, pero incluso así no me sentiré bien. Tengo mis buenos hechizos, pero aun así sigue existiendo el dolor omnipresente de la enfermedad de la fibromialgia, la depresión, los problemas estomacales, etc. Aún así, hay momentos mejores en los que puedo hacer más y disfrutar más, pero ¿qué hago mientras tanto? Me estoy cansando, física, mental y emocionalmente. Estoy perdiendo la esperanza de que hay días buenos por delante y que se puede encontrar alivio. No debo permitirme llegar así, Siempre debo creer que hay esperanza, pero ahora mismo es difícil. Debo mantener la idea de que esto también pasará. Solo espero que pase rápidamente.

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