Fibromialgia: lidiar con la sobrecarga sensorial

La sensibilidad a la estimulación ambiental, incluyendo las luces brillantes, ruidos fuertes, e incluso ciertos olores, puede hacer la vida con fibromialgia particularmente desafiante. Es posible que despiertan cada mañana preguntándose qué nuevo disparador puede exacerbar los síntomas de la fibromialgia.

resultado de la imagen de ruido y Fibromialgia

“Yo trato con todo sobre una base del día a día”, dice Stephanie Parker, de Dover, Del., Quien cree que sus síntomas son consistentes con la fibromialgia, pero aún no ha sido diagnosticado formalmente. Los síntomas le impiden participar en las actividades diarias de la familia, tales como ver juegos de pelota de sus niños en las tardes.

Tina Pringle, que fue diagnosticado hace 16 años con la fibromialgia, dice que sus síntomas de fibromialgia han sido abrumador a veces. “Los síntomas todos se funden, y debido a la fatiga y el cerebro niebla, todo se convierte en un laberinto de pura confusión”, explica Pringle.

El Reino Unido residente dice que su oftalmólogo identificó su sensibilidad a la luz, pero es su sensibilidad al sonido que es más preocupante. “Ruidos fuertes, un niño llorando, música alta, gritos, ladridos de perros, y mi peor molestia, silbidos, son un problema”, dice ella. “Los ruidos resuenan en mi cabeza como un platillo que hace ruido y causan todo mi cuerpo al tiempo para arriba.”

Como su tensión crece, también lo hace su dolor de la fibromialgia, y ella tiene que retirarse a una habitación oscura para relajarse. Su reacción es particularmente problemático en casa, donde su hija adolescente a menudo le gusta jugar música fuerte y comportarse de manera adolescente típicamente bullicioso.

El ruido es sólo el comienzo de la angustia sensorial que podrían estar contribuyendo a su dolor de la fibromialgia. Las personas que viven con el informe de la fibromialgia:

  • El dolor crónico y la ternura
  • sensibilidad al tacto o presión aumentó
  • Aumento de la sensibilidad a los sonidos fuertes
  • Aumento de la sensibilidad a los olores desagradables
  • Aumento de la sensibilidad a los cambios de temperatura
  • Aumento de la sensibilidad a ciertos sabores

Lo que está pasando dentro de tu cabeza

Esta sensibilidad puede ser difícil para que usted pueda entender, y mucho menos explicar a amigos y familiares que no ven ningún problema hacia el exterior. Las sensaciones incómodas y dolorosas de la fibromialgia pueden ser parte de la forma inusual de su cerebro de procesamiento del dolor, sugiere el investigador fibromialgia Benjamin Natelson, MD, profesor de neurología en el Albert Einstein College of Medicine de la ciudad de Nueva York y autor de  sus síntomas son reales: ¿Qué Qué hacer cuando su médico dice que nada está mal.

De acuerdo con un estudio publicado en los  Archivos de Medicina Física y Rehabilitación  que compararon y analizaron los informes de las mujeres con artritis reumatoide, las mujeres con fibromialgia, y mujeres sin un síndrome de dolor, las personas con fibromialgia eran mucho más propensos a reportar intensos, respuestas desagradables a los sonidos , olores, sabores y sensaciones táctiles.

Otro estudio, publicado en la revista  Dolor Investigación y Tratamiento, sugiere que los cambios en la química del cerebro en las personas con fibromialgia pueden estar relacionados con la sensibilidad a estímulos como el sonido y el olor. Los estudios de imagen han proporcionado representaciones visuales de esta alteración de la respuesta a las sensaciones. En algunos aspectos, los cerebros de las personas con fibromialgia pueden ser hiper-sensibles a incluso la posibilidad de dolor o malestar, dice el doctor Natelson.

Los investigadores también han probado muestras de tejido y encontrado niveles elevados de marcadores de inflamación en la piel de las personas con fibromialgia – que pueden estar vinculados a la hipersensibilidad al tacto. sensibilidad al tacto es real para la gente como Pringle, que dice que hay veces en que incluso tomados de la mano con su pareja es demasiado dolorosa de soportar. La ropa que es demasiado apretado, masajes y toques de luz, incluso toda trinquete hasta su dolor y el estrés. Para empeorar las cosas, Pringle dice que en ocasiones incluso se estremece involuntariamente cuando es tocado por otras personas, que pueden ser dañinas para los que la rodean.

¿Qué hacer con síntomas de la fibromialgia

¿Cómo se puede hacer frente a un problema que podría surgir de cableado de su cerebro? Aquí hay algunos pasos prácticos que puede tomar para controlar estos síntomas sensoriales:

  • Trabajar con un médico de apoyo.  “Si su médico no cree que tiene fibromialgia, obtener una nueva”, subraya Natelson. El tratamiento del dolor será más eficaz, dice, cuando usted y su médico está en el mismo equipo. Tres medicamentos de venta con receta han sido aprobados para el tratamiento de la fibromialgia y podrían ayudar a controlar su dolor de la fibromialgia y reducir su hipersensibilidad.
  • Ser activo.  Una revisión de ejercicio como parte del tratamiento de la fibromialgia, publicado en la revista  Rheumatology International,  mostró que el ejercicio aeróbico puede contrarrestar el dolor y reducir al mínimo la sensibilidad de los puntos sensibles. Natelson informa acondicionamiento físico suave. Su receta: “Caminar durante 30 minutos cada dos días a alrededor de 1,5 a 2 millas por hora” Esto aumenta el flujo sanguíneo a los músculos y tejidos. Muy poco a poco, aumentar su ritmo de alrededor de 3,6 mph. Este nivel de actividad “parece regular a la baja la percepción del dolor,” explica Natelson. Caminar al aire libre es ideal, pero si usted es sensible a los cambios de temperatura, luz, olores y otras sensaciones, iniciar un programa de caminar dentro de su casa o en el gimnasio.
  • Evitar los factores desencadenantes.  Lo más que puede, controlar el ambiente de modo que limite las posibles causas de molestias:
    • Ventilar bien su casa para eliminar los olores fuertes.
    • Considere tapones para los oídos o auriculares con cancelación de ruido para minimizar o eliminar los sonidos fuertes.
    • Cuidar de su piel y reducir la irritación mediante el uso de productos suaves y evitar las temperaturas extremas, tales como agua muy caliente o muy fría.
    • Use ropa suelta y el vestido en capas ligeras que se pueden eliminar si el peso de su ropa comienza a irritar la piel.
    • Establecer límites. Cuando su sensibilidad a la luz es especialmente intensa, Pringle simplemente explica a miembros de la familia que no puede ver la televisión con ellos justo en ese momento.
    • Crear un retiro. En días particularmente difíciles, una cómoda, fresca, oscura habitación podría ser un lugar relajante para relajarse y recargar.
    • Usar gafas de sol. Dentro o fuera, si se siente sensible a la luz o ciertos patrones, poner en algunos tonos y dar a sus ojos un descanso.

síntomas de la fibromialgia que afectan a todos los sentidos pueden hacer cada día una lucha, y cuando experimenta dificultades para manejar sus sensibilidades, puede tener la tentación de quedarse en casa y evitar la socialización y estar al aire libre. Aun así, Natelson dice que esto no es una buena estrategia en el largo plazo. En su lugar, trabajar estrechamente con su médico para desarrollar estrategias que limitan su exposición a ciertos factores desencadenantes y sin que le impide disfrutar del mundo que le rodea.

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