Les 10 choses les plus odieuses que les gens disent aux personnes atteintes de fibromyalgie

Nous savons que, en plus de souffrir la douleur réelle, la fatigue et le brouillard de la fibromyalgie, de nombreux patients souffrent également de la stigmatisation associée à avoir une maladie chronique. Nous avons demandé à nos lecteurs pour quelques-uns des exemples les plus odieux de ce que les gens disent à leur disposition. Soyez prévenu, une partie de ce genre de choses est juste navrant. Mais il est important que nous apportons ce à la lumière. Nous avons eu une telle réponse écrasante, nous avons décidé de partager certains d’entre eux.

Une note rapide du contenu / avertissement de déclenchement: Certaines de ces choses sont  vraiment odieux. Nous les publierons dans l’espoir qu’ils peuvent être partagées avec des personnes susceptibles de dire certaines de ces choses et réfléchir à deux fois les dire, mais ils pourraient aussi être traumatisant pour les gens qui entendent des choses comme ça dans leur vie quotidienne.

1. Les personnes atteintes de fibromyalgie sont paresseux

C’est un tueur, et la grande majorité de nos répondants ont mentionné qu’ils se dit simplement « ne veulent pas faire » des choses.

Quelques réponses:

Que je suis paresseux je joue à mon fibro et son dans votre tête et vous pouvez faire plus que vous pensez que vous pouvez!

Lazy, tout le monde fait mal. Tout le monde a de l’arthrite. Vous devez exercer, vous devez marcher. Bla bla bla.

Mon 17 ans fils a brisé mon coeur, il a dit que je n’étais pas malade, j’étais paresseux. Même si il me entend pleurer dans mon sommeil dans la douleur a jeté deux murs. Je suis 53 et doivent utiliser un déambulateur.

Ils me ont dit que j’étais paresseux que je me suis levé et déplaçais je me sentirais mieux ou son dans ma tête si je trouverais quelque chose pour garder mon esprit occupé, je serais ok.

« Les services de protection de l’enfance ont pris mes 5 enfants. Sur les dossiers judiciaires, le juge m’a renversé et mes médecins et témoin expert et a dit qu’il était pas une maladie et je suis paresseux.

Lazy, un gaspillage d’espace, rien de mal avec moi, alors pourquoi voudrais-je sangsue hors du gouvernement à vouloir obtenir un handicap?

Mon ex mari m’a dit que j’étais paresseux épongeage c $ t & que je ne contribuait pas financièrement ou autour de la maison assez après beaucoup d’abus, j’ai découvert qu’il a triché et il est parti.

Comme vous pouvez le voir, ce qui est très commun et blessants. En fait, les gens eamil Fibromyalgie traitement juste crachent ce genre de haine. Par exemple, cette personne s’eu tellement travaillé jusqu’à ils ont fini dans toutes capitalisations:

vous faibles individus sont à la recherche d’une solution rapide, un remède simple, il n’y en a pas, très au-dessus (sic) et prendre soin de vous, lol aucun médicament va aider avec fibro TOUTE PERSONNE vous devez réellement obtenir votre cul pour vous aider. Pourquoi ne pas poster VÉRITÉ comme ça? Arrêtez poubelle colportage. VOUS TROMPEUSE. VOTRE PAGE Je TRASHY arrêté de suivre bullshit ET JE GARDERAI RAPPORTS CES POSTES EN TROMPEUSE. PASSEZ UNE BONNE JOURNÉE. (Sic)

Nous avons eu une belle journée, et interdit cette personne, aussi. Mais le commentaire de cette personne touche à notre prochain type de commentaire haineux.

2. Fibromyalgie n’existe pas

Un classique que tout le monde a entendu, et il est si difficile parce que nous devrions peut-être avoir fait le numéro un communiqué haineux parce qu’il est la base de toute stigmatisation des personnes atteintes de fibromyalgie.

J’ai vu un médecin pour une condition médicale différente. Une fois qu’il a vu Fibromyalgie inscrits sur mon dossier médical, il a fait un point de me dire: « Je ne crois pas Fibromyalgie est une chose réelle. Les médecins qui font ces jours-ci devraient avoir leur licence en revue. Il n’existe pas. Quels médicaments prenez-vous pour cela?

C’est une maladie terrible. Je mets mon visage sur 24/7 courageuse. Personne ne peut voir notre douleur et de la souffrance, donc ils remettent en question si elle est réelle ou nous sommes juste attention à la recherche. Il est beaucoup plus facile de faire semblant que je suis ok, que d’expliquer pourquoi je ne suis pas.

3. Il est dans votre tête

Ceci est étroitement lié à la «n’existe pas, » mais il est une façon beaucoup plus explicite pour Gaslight personnes souffrant de fibro.

Que je suis paresseux je joue à mon fibro et son dans votre tête et vous pouvez faire plus que vous pensez que vous pouvez! Et les gens ont dit que je ne veux pas l’entendre et nous avons tous les problèmes. Ils devraient intervenir dans mes chaussures pour un jour !!

Ils vont dire des choses comme « vous n’est pas malade, il est dans votre tête » ou « il ne semble pas que vous êtes dans la douleur » fait mal au cœur avec des larmes que personne ne pourra jamais vous comprendre.

Ils ont m’a dit que j’étais paresseux que je me suis levé et je déplaçais me sentirais mieux ou son dans ma tête si je trouverais quelque chose pour garder mon esprit occupé, je serais ok.

Comme vous pouvez le voir, les gens sont cruels et ils aiment utiliser plus d’une catégorie de commentaires haineux.

4. Vous Do not Look Sick

Étant donné que la fibromyalgie est une maladie invisible, les gens qui ont souvent ne « regarde » malade, quoi que cela signifie. Il est aussi l’une des choses les plus frustrantes un guerrier fibro peut elle.

Vous ne regardez pas malade. Regardez-vous, vous êtes un coureur. En aucun cas cela est mauvais. Suck it up …. J’ai perdu 2 très bons emplois bien rémunérés à cause de ma maladie truquée.

Je suis allé à un concert dans un stade à dire que je ne regarde pas désactivé et que la fibromyalgie est juste le fruit de mon imagination pour escroquer les payeurs d’impôts, inutile de dire que nous avons quitté le concert et se dirigea vers la maison droite, écrit une lettre de plainte mais jamais même reçu un accusé de réception de leur part.

Cette femme est venu à la voiture et dit que vous ne pouvez pas stationner là? Sur lui montrant mon disque d’invalidité elle ne vous regarde désactivé et il était répugnant que nous avons pu avoir une voiture ???

5. Dieu vous punit pour vos péchés

Ces personnes prennent la condamnation des victimes au niveau suivant en faisant maladie un jugement sur le caractère moral d’une personne. Il est honteux.

Mon oncle, qui est un prédicateur, m’a dit que je puni par Dieu pour toutes les choses sauvages que je l’ai fait et ma famille se demande pourquoi je ne crois pas.

La chose la plus grossière on m’a dit est Dieu me punit pour mes péchés. Je sais que beaucoup de bons chrétiens qui sont morts d’un cancer … Je ne pense pas qu’ils ont été punis soit. Comment osent-ils dire cela pour moi?

6. Vous essayez juste d’obtenir des médicaments

C’est aussi un triste effet secondaire de la crise des opiacés aux États-Unis. Nous supposons que quelqu’un dans la douleur est juste essayer d’obtenir des pilules.

Je suis paresseux, bon à rien, ne fera rien de ma vie, je dois faire plus, im un popper pilule (j’ai du mal à prendre des médicaments à moins d’avoir trop) et mon préféré est que je fais semblant tout!

Je ne sais pas, mais le jour je sentais comme une gauche addict sur Tylenol. Je suis 54 ans quand vous arrêtez de vous défendre. Ça m’a fait pleurer.

Je travaille avec ma mère et je faisais une journée de douleur terrible. L’heure du déjeuner, je l’avais enfin eu et je ne pouvais pas retenir les larmes. Je pleurais et pleurer comme elle a passé 10 minutes en me disant de le sucer et retourner au travail. Je lui ai dit que je devais rentrer à la maison et de prendre mes médicaments dont elle a dit: « Je pense que vous êtes juste accro à vos médicaments. »

J’ai été appelé un toxicomane à un moment donné parce que j’étais tellement de médicaments. Je sentais que je pourrais aussi bien avoir été prise de vue avec la façon dont les gens me regardaient « .

J’ai eu un coup d’œil de réceptionniste à mon dossier et je compte mes médicaments me disant que je devrais encore avoir beaucoup à gauche, ne me saluer, et je me suis finalement dit à mon médecin après mois et il a obtenu tellement bouleversé avec elle et m’a dit de lui dire les les choses tout de suite, elle n’a pas le droit de faire ça. Il lui a trié et aussi le pharmacien qui commenter mes médicaments et combien je prends, sans connaître mes nombreuses questions médicales.

7. Vous avez juste besoin d’exercice et perdre du poids

Ceci est similaire à la « Vous êtes paresseux » et « il est dans votre tête » avec l’avantage supplémentaire de poids-shaming. Il est méprisable. Voici ce que nos lecteurs partagés:

J’ai dû faire face à Dr.s sans instruction qui étaient insensibles cependant, disant des choses comme, Eh bien, si vous perdez un peu de poids et de sortir et de l’exercice, vous seriez ok et cette condition n’est pas vraiment une condition!

Il suffit de l’exercice et perdre du poids et vous vous sentirez mieux. Ou vous son heureux d’avoir ce diagnostic, vous cherchez juste des excuses.

« Eh bien peut-être si vous avez perdu du poids et vous exerciez me sentirais mieux .. MERCI .. SIS vous aimez trop .. peut-être si elle savait que la majorité des plus de 20 pilules je prends cause de gain de poids quotidien et ballonnements. »

roulement des yeux en me disant: « Oh, je ne crois pas à toutes ces conneries! Si vous exercez juste et alimentation, vous allez commencer à se sentir mieux. Perdre du poids et vous vous sentirez mieux. Je serais dans la douleur aussi si je viens d’exposer toute la journée.

 

Perdre du poids, vous êtes trop gros, c’est pourquoi vous êtes dans la douleur, vous portez trop de poids sur votre corps. « Vous avez besoin de se déplacer et de l’exercice. » On m’a dit cela plusieurs fois.

Membre de la famille m’a dit de le sucer juste vers le haut. Vous n’avez pas besoin de votre Lyrica. Vous ne vous êtes pas malade regardez un peu plus de poids …… U N’y allez pas assez à … .. Il est dans votre tête ……

8. Vous voulez juste attention

Les gens aiment sortir leur psychiatrie fauteuil degrés pour celui-ci. Le syndrome de Munchausen est une chose réelle, mais il en est de la fibromyalgie. Les gens sont si rude.

« Attention à la recherche »
« Il est dans votre tête »
« Il ne peut pas être si mauvais »
« Cessez d’ être paresseux »
« Vous devez sortir et faire plus d’ exercice »
« Je l’ ai fait avec ça et ce qui est pire »
‘Êtes – vous sûr que vous re ne pas mettre sur?
« Vous êtes toujours malade »

Était à l’hôpital avec la pire douleur flamber, avait tant d’épreuves et tous étaient normaux! … .donc le dr a dit à mon père votre fille préfère être à l’hôpital ?? … doit bien pensé que le rideau bleu autour de mon lit était insonoriser.

Vous voulez juste attention. Il n’y a rien de mal avec vous. Vous êtes un hypocondriaque. Vous avez juste besoin d’un peu d’exercice et de perdre du poids. Ce ne sont que quelques-unes des choses que j’entends!

9. C’est tout vous parlez

Ceci est un grand. Les gens ont peur de parler parce qu’ils ont rencontré des rouleaux oculaires ou pire. Voici une astuce: Si vous ne voulez pas savoir comment quelqu’un fait, ne demande pas.

Je ne peux pas parler de ce que je ressens … Je obtenir toujours le même commentaire … vous dites toujours vous n’êtes pas se sentir bien … comme c’est quelque chose que je fais jour up.Each est différent et peut être un combat .. Il est difficile quand les gens autour de vous ne comprenez pas comment votre sentiment et ne veulent pas l’entendre et ne se soucient pas vraiment.

10. Oh ouais, ça suce, mais pas aussi mauvais que  cela

Il y a des gens qui ne peuvent pas simplement preuve d’empathie. Ils doivent surpasser votre douleur en vous disant à quel point ils sont mal.

Un ami d’un (ami), a dit: « OI ont aussi, mais c’est rien comparé à » et c’est là où ils disent que leur condition est pire que la mienne.

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228 thoughts on “Les 10 choses les plus odieuses que les gens disent aux personnes atteintes de fibromyalgie

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