4 cosas del día a día difíciles de hacer con Fibromialgia y Síndrome de Fatiga Crónica

4 cosas del día a día difíciles de hacer con Fibromialgia y Síndrome de Fatiga Crónica .

Comentario de Anilein, Afibro.org .- Seguramente si tienes  unos años con fibromialgia ni te darás cuenta ya de tus dificultades del día a día, cosa que sí es observada con preocupación y angustia en quienes se inician con la enfermedad. De pronto tendrás contracturas  en los brazos mientras te secas el cabello, y por ende dolor y no detectas el porqué. La ropa es todo un caso en la mayoría de los días para muchas. En mi caso personal, cada vez que puedo suelto el botón del pantalón y disimulo, y definitivamente todo me molesta, zapatos, medias, ….todo. Llegar a casa y ponerse ropa holgada es todo un placer, verdad?

Hablar largamente  por teléfono??? ya me olvidé casi como es. Más bien me irrita, no se como ponerme y no veo el momento de colgar.

En cuanto a manejar….somos peligros@s al volante, más en días de fibroniebla. En USA aconsejan a las personas con fibromialgia que eviten manejar. Nos distraemos fácilmente y podríamos chocar. Pero además,  se dan casos de quedarnos dormidas (mucho más quienes sufren Síndrome de Fatiga Crónica) . Y sé de varios casos . Y ni hablar de los casos  de fibros manejando tranquilamente y de pronto sentirse totalmente perdidas (desorientación espacial), aún yendo por caminos rutinarios, fibros de toda edad, inclusive muy jóvenes.  No saber donde están ni a donde van por varios minutos. Deben parar su vehículo, se echan a llorar y luego entran en un ataque de pánico. También ocurre caminando. Tan igual como ocurre al 25pct de personas de edad avanzada que ya inician problemas cognitivos.

A la fibromialgia la destacan por el dolor, fatiga, depresión, ansiedad, insomnio, migrañas y un sin número de etcéteras. Y nos medican por todo eso.  Pero qué hay de los problemas cognitivos de lo que el médico no habla? Qué hay de jóvenes fibros que dejan sus estudios o pierden sus trabajos por falta de concentración, distracción marcada y otros temas afines, y que además de la fibromialgia deben superar su frustación?

Fibromialgia, llamada la enfermedad de los 100 síntomas. ……que nos parecen mil……

Por Adrienne Dellwo , About.com Guía ,  11 de abril 2012

 

La fibromialgia y el síndrome de fatiga crónica pueden afectar cada aspecto de su vida, hasta las tareas más comunes de la vida diaria. A veces, usted puede sorprenderse por la dificultad del “ordinario”  de las cosas.

A través de hablar con un montón de gente con estas enfermedades,  he identificado 4 cosas cotidianas que con frecuencia llegan a ser difíciles para nosotros debido a nuestros muchos síntomas. Mucha gente piensa que son los únicos que tienen este tipo de problemas, pero definitivamente no estamos solos!

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151 thoughts on “4 cosas del día a día difíciles de hacer con Fibromialgia y Síndrome de Fatiga Crónica

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