La perte de mémoire de fibromyalgie et d’autres difficultés cognitives

Je suis sûr que la majorité d’entre vous avec la fibromyalgie ont connu, à un moment ou un autre, en parlant sur un sujet que d’oublier un important … euh, qu’est-ce que vous appelez .. euh, euh (claquant des doigts)? Oh, les frustrations d’avoir fibro-brouillard, le terme affectueux pour ces problèmes cognitifs que la difficulté de mot trouver, perte de mémoire et la compréhension globale.

J’essaie d’en rire, appeler mes moments « Duh! », Mais au fond, il peut être très déconcertant. Certaines questions créent une réaction viscérale plus forte que les autres. Pour moi, une partie de la réponse est la fierté autant que vouloir rester cohérent dans mon fonctionnement.

Au lycée, je suis un étudiant supérieur à la moyenne en anglais, avec des accolades à la littérature, par opposition à la grammaire. Cela dit, je pense que la rivière des mots de vocabulaire est peu profond, donc quand un mot ne peut pas être récupéré, peu de synonymes sont facilement disponibles. Je suis aussi l’un pour me exprimer plus efficacement par l’écriture, donc si je me bats pour trouver les mots lors de l’écriture, pouvez-vous imaginer la quantité de l’argot et la terminologie de base qui sort de ma bouche en parlant?

Je ne me souviens pas quand le mot d’enquête a commencé. Cependant, je ne sais quand il magnifié au point d’être dérangeant. J’étais à une épicerie fine sandwichs de commande et j’ai oublié « poisson de thon. » Je devais littéralement pointer l’élément à travers le comptoir fermé de verre. À ce moment-là, je me suis demandé si c’était ce que les gens atteints de démence à un stade précoce connu. Il est une dure réalité, et un effrayant, mais au moins nous avons la chance que le symptôme ne dure pas.

Un autre symptôme fibro-brouillard est lorsque la logique ou la compréhension est floue. Lorsque cela arrive à moi, je me sens comme une pancarte avec l’expression « ne calcule pas » pourrait aussi bien être placé sur mon front. Non seulement est-il gênant, je crains que d’autres penseront que je ne suis pas très lumineux. Je pense que c’est le plus difficile pour moi à face.

Pré-fibromyalgie, et avant que la maladie avait progressé au stade sévère, je suis un travailleur acharné, apprend vite, et nous avons apprécié un défi. J’ai été agréablement surpris quand des professeurs et des mentors m’a appelé smart. Pour perdre cet avantage, je me sens impuissant et il est vrai inepte, comme si toutes les années de connaissances acquises ont été aspirés hors de moi, comme mettre un vide dans le sens inverse.

Au moins je ne faut pas oublier, être oublieux. Ma mémoire est quelque chose qui m’a rendu fier. Je pourrais réciter des portions d’une conversation mot pour mot. Au travail, lors d’entretiens psychiatriques, en dehors de prendre des notes approfondies, je me souvenais plus de la mémoire lors de la rédaction d’un rapport ou à discuter lors d’une réunion. Pour perdre cette compétence est difficile à tolérer parfois. Post-it toujours été mon meilleur ami quand il est venu à faire des listes. Maintenant, il est un rappel pour la plupart des choses. Faire à moi-même connu le problème ne fait qu’aggraver, en particulier mot trouver des difficultés.

Comme je l’ai mentionné, ces déficits se produisent hors du bleu et peuvent disparaître tout de même. Je ne l’ai pas trouvé un modèle, et un début d’une éruption ne garantit pas son apparition. Quand cela arrive, j’essaie de prendre une grande respiration et, au besoin, dire d’autres qui savent que j’ai la fibromyalgie que j’ai une défaillance dans la mémoire ou la compréhension, ou la difficulté à trouver les mots exacts. Si c’est quelqu’un qui ne connaît pas mon état de santé, je ris juste à côté de l’événement avec une blague ou demander à la personne de « rafraîchir ma mémoire », ou quelque chose de l’Etat à l’effet de « ne peut pas penser le mot. » Dans d’autres termes, je fais des commentaires que beaucoup utilisent dans des situations de tous les jours, sans les basculer hors de mes problèmes cognitifs.

J’essaie de lire tous les jours, que ce soit les nouvelles, des articles de recherche, ou encarts dans le courrier. Je joue aussi des mots croisés et « Bookworm » (un jeu de recherche de texte en ligne). Non seulement j’apprécie ces activités, mais je me plais à penser que je prends un pas vers garder mon cerveau actif et fort.

Principalement j’essaie de se rappeler que mon moi actuel est toujours intelligent et contribuer, indépendamment de toute limitation.

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