«Invisible»: le film sur la fibromyalgie se produit

Nick Demos, un producteur primé et réalisateur de Tony, a une mission: il veut apporter un diagnostic, un traitement et des conséquences durables à la conscience du monde à la fibromyalgie. Il est personnellement touché par la fibromyalgie: sa mère, une femme vivant avec la fibromyalgie, a trouvé un manque de soulagement de la douleur, des ramifications sociales et peu de réponses.

Il est en mission de découvrir les expériences d’autres personnes atteintes de fibromyalgie, y compris les personnes généralement considérées comme n’ayant pas de syndrome de douleur chronique, y compris un jeune athlète. Il dit qu’il est important d’amener la fibromyalgie à l’avant-garde dans l’espoir d’obtenir des réponses.

“Nous avons demandé à toutes les personnes interviewées pour ce film,” Qu’est-ce que la fibromyalgie? “La réponse n’est pas cohérente, et pour ceux qui ne l’ont pas, il y a un manque d’urgence pour trouver la réponse”.

Selon Demos, leurs résultats jusqu’à présent indiquent que les personnes atteintes de fibromyalgie sont soumises à un système de soins de santé cassé et que les données démographiques telles que l’accès à l’éducation et les facteurs socio-économiques entrent en jeu, selon le National Pain Report . Dans son film, il parle à des personnes d’origines différentes, d’appartenances ethniques et de groupes socioéconomiques, mais découvre des thèmes communs pour tous les participants, dit-il.

“Maladies que personne ne voit, plus encore, des maladies qui pourraient potentiellement déclencher ou être déclenchées par toutes ces autres conditions qui sont en fait fatales. La fibromyalgie doit encore être le centre d’attention, car elle ne vous tue pas, au sens technique. Mais ceux de la communauté de la Fibromyalgie vous diront comment la détérioration de ce syndrome peut être si elles ne reçoivent pas l’empathie, l’éducation sur le mode de vie et le soutien communautaire que tous leurs homologues mortels ont déjà. Il reste un sujet controversé, bien que des millions prouvent que la maladie est réelle et débridée “.

Le film devrait être diffusé en 2017 et sera présenté dans plusieurs festivals de cinéma l’année prochaine, dit Demos. Jusqu’à présent, le film a été entièrement fondé sur le don, généralement pour les personnes souffrant de fibromyalgie ou des groupes organisés pour connaître la fibromyalgie. Le syndrome a été qualifié de «maladie difficile à atteindre», selon la douleur chronique dans le corps. Il se caractérise par des maladies chroniques, des douleurs corporelles, des maux de tête, des troubles du sommeil et des sautes d’humeur. La fatigue associée à la fibromyalgie peut également être affaiblissante et entraîne la difficulté de distinguer entre la fibromyalgie et le syndrome de fatigue chronique.

Ce n’est pas une maladie qui cause des déformations ou menace la vie par des moyens physiques, bien que les patients atteints de fibromyalgie et d’autres troubles chroniques douloureux soient plus susceptibles de prendre leur propre vie. Les personnes atteintes de fibromyalgie décrivent les conséquences si graves: difficultés relationnelles, difficulté à faire de nombreux emplois, instabilité financière et humeur dépressive. Bien que la cause exacte de la fibromyalgie ne soit pas connue, certains chercheurs pensent que cela est dû aux niveaux de produits chimiques dans le cerveau et qui peuvent être d’origine génétique, car il semble être héréditaire. Les femmes sont plus susceptibles d’être affectées, bien que le syndrome puisse affecter les hommes.

Bien que des traitements soient disponibles, tels que les médicaments Lyrica et Cymbalta, aucun médicament ne semble être la réponse pour tous, et cela peut prendre beaucoup de temps et d’essais et d’erreurs pour savoir quels médicaments fonctionnent pour les patients et quelles doses ils ont besoin. Les soins personnels sont une partie importante du traitement des symptômes de la fibromyalgie, comme reposer suffisamment, manger des aliments nutritifs et éviter les circonstances qui causent un stress excessif ou une énergie émotionnelle. Cela peut constituer un défi pour de nombreuses personnes en raison des obligations de la vie et des symptômes entourant la maladie elle-même.

Beaucoup de gens qui ont ce trouble se sentent isolés et mal compris parce que le syndrome est invisible pour les autres et n’est pas bien compris par personne, y compris de nombreux médecins. Demos espère que son film peut éduquer les gens et les sensibiliser à ce syndrome débilitant.

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