16 maneiras de imaginar como a desordem da fibromialgia se sente Por favor, compartilhe esta informação

1.   “Imagine a pior doença, fadiga e dor e sua cabeça está em um nevoeiro profundo, onde você pensou em ir ao hospital. Agora imagine que você se sente assim todos os dias e, sabendo que se for ao hospital, provavelmente não encontrará nada de mal e eles o mandarão para casa e lhe dirão para ver o seu médico. Isso é um distúrbio de fibromialgia.

2.   “Imagine que você acorda de manhã sentindo-se exausto, como se não tivesse dormido em dias. Enquanto você está deitado na cama, tentando reunir a energia para se levantar e ir ao banheiro, você enfrenta o pensamento: ‘Posso passar outro dia?’ Então imagine que tudo que você faz, mesmo as menores tarefas, parece que você está andando em concreto molhado até a cintura.

3.   “Imagem de um telefone. Há algo errado com o carregador. Não importa o quanto você tente cobrar, você nunca cobra mais de 50%, se tiver sorte. Feche todos os aplicativos para tentar conservar a bateria, mas isso não ajuda. Reduz rapidamente a zero por cento em pouco tempo. Agora imagine que você foi atropelado por um ônibus e você é o telefone.

4.   “Eu digo às pessoas: ‘Você sabe como se sente quando está gripado? Dores no corpo, tudo dói até o seu cabelo e unhas? Sim, esses são meus bons dias.

5.  “Pense na pior gripe que você já experimentou, e junte-se a ela com a queda de três lances de escada, diretamente em uma colmeia. Isso é um distúrbio da fibromialgia.

6.   “Para mim, a fibromialgia desordem é um pensamento confuso e distorcido, e movendo-se de um dia ruim, eu sinto que eu estou tentando percorrer a gelatina de espessura. Fazer coisas normais causa dor. Esgotamento total sem o benefício de um sono reparador.

7.   ”  É como se o seu corpo tivesse sofrido um acidente de carro enquanto você estava gripado e você nunca terminou de superar nenhum deles.

8.   “A pior coisa sobre esta doença é que você não pode [imaginar]. Há também muitos sintomas que eu acho que as pessoas se perdem depois de enumerar o primeiro 10. Muitas vezes, essa é a razão pela qual as pessoas com fibro sentir tão isolados e estão se voltando para a comunidade online para encontrar pessoas que entendem.

9   “Às vezes, quando tiro a roupa e olho no espelho, espero ver hematomas em todos os lugares porque meu corpo dói muito e dói muito. Então, há momentos em que eu gostaria de ter hematomas porque as pessoas podem levar minha dor a sério.

10.   ”  Imagine ser enrolado em um burrito por um cobertor feito com aquelas cadeiras de massagem com as bolas nelas. Exceto você nunca sabe quantos vão pressionar você ou onde. Alguns dias é como se os músculos mais profundos do meu corpo fossem atingidos repetidamente, enquanto outros sentem que minha pele está crua. O tempo todo eu não consigo pensar com clareza, como o meu oxigênio está acabando devido ao peso e dor.

11.   “Meu corpo parece ter sido atingido por um caminhão ou outros dias, alguém tem uma boneca de vodu enfiando alfinetes e torcendo-os com um distúrbio de fibromialgia.

12.   “Dor extrema que faz você querer vomitar.” É difícil pensar, comer, dormir ou fazer coisas “normais”. Seus sensores estão desligados. Parece que o barulho soa em uma caverna, tudo se repete. O cheiro incomoda você. As luzes machucam seus olhos e você fica tonto como um passeio de carnaval.

13.  “É a síndrome da princesa e da ervilha … todas as sensações possíveis se intensificam. Estar em uma ponte ou perto de uma escada rolante parece um terremoto. Você cheira coisas que ninguém mais faz. E você não pode desligar coisas como luzes zumbindo.

14.   ”  Como conseguir os cavalos de Charlie em músculos que você nem sabia que existiam. Quando você sai para comer, você torce constantemente porque o assento machuca suas costas. Você está sempre cansado, e até mesmo um copo cheio de café torrado escuro não vai resolver isso. “

15.   “É como o dia depois de um treino extenuante, com músculos duros e doloridos. Adicione uma queimadura solar e uma dor de cabeça, depois a gripe além disso. A fadiga da fibromialgia é como se o seu sangue se tornasse cimento nas veias. “

16.   “Às vezes tenho episódios graves de distúrbio da fibromialgia que sentem como você se sente quando toca a língua quando alguém o desafia quando você é mais jovem. Você se sente por uma hora ou mais antes dos analgésicos entrarem.

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